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Mar 22, 2016 · Five years with migrating RSD. It has affected my entire body and organs. in Bones, Joints & Muscles

Suffering for nearly 5 years now with migrating RSD. Initial doctors failed to diagnose and treat me for nearly a year despite very pronounced symptoms. What started as RSD in my leg is now all over and impacting my organs as well. I’m trying (and have tried) SCS, IVIG, ketamine infusions, acupuncture, LDN and so many other first and second line meds, off label meds, PT, biofeedback, hypnosis, oils, nutritional/dietary changes, creams and even surgical nerve decompression. Nothing has been remotely effective, and now I have small fiber neuropathy. My overall health is compromised too. Does anyone have any suggestions? (BTW, my original orthopedic injury is still painful and not properly repaired.) Any physician who sees me and hears I have RSD, quickly ends the appointment and sends me on my way replying that my injuries are beyond their expertise. I welcome any and all suggestions. Help??!!