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Nov 2, 2019 · Phantom Pain in Chronic Pain

I understand what you are saying. I am an above-knee amputee. I lost my leg in Vietnam over 50 years ago and have had phantom pain every day since then except for days when I use pain medicine which is getting very hard to get. Of course at my age now I have many other pain problems some of them related to the amputation. In the army hospital, I was on an amputee ward which helped me to adjust. Some guys had pain like me and some did not. At that time no one knew much about phantom pain and even now I don't think they know very much more. Good luck. 19lin

Aug 16, 2018 · Pain management and anxiety disorders in Chronic Pain

I wish I could give you some answers other than you are not alone. It is possible that things will change, my doctor told me not to get too excited yet as many people disagree with these changes and he said to wait to see if it all happens. The only thing I can think of is to leave this country and try to go to one that has better laws that will allow a continuation of treatment. If you have a good relationship with your doctor ask him/her what they would do if they were in your shoes. Also a letter writing campaign to your elected officials that presents your position. Respectfully ask your officials what they would do in your place. Make sure to point out all the different types of treatment that you have tried that did not work. If you can make them see it from your position they may change. Do not threaten self harm or you may find some authorities at your door with a straight jacket and most elected officials already know that chronic pain suffers have one of the highest suicide rates in the country.
In addition to writing officials yourself ask others who understand your position to write their officials for you. If moving is possible for you then say that, since most officials do not want you or me taking our social security and pension money to some other country to spend it. There are web sites that provide information on countries that are good retirement sites. There are many Americans who move overseas for retirement since in the right country their pension and social security goes a lot farther. There are web sites that provide information on overseas retirement locations that welcome Americans.
I know this may not be much help for you, but all of us that use strong pain medication to lead a more normal life are in danger and we need to do what we can to convince others that the proposed rules will not help anyone. Good luck and keep trying. 19lin

Jul 23, 2018 · Chronic Pain, alternative Treatment in Chronic Pain

I don't know much about it but Drugs.com has some information on it if you want to check it out. 19lin

Jul 1, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I fear things are only going to get worst in the future. Sorry to hear what your state is doing. 19lin

Jun 23, 2018 · Chronic Back Pain for Years in Spine Health

Regarding your comment of being too close to the VA hospital, I believe the limit is 40 miles, but I am not sure? They have literature on it at the VA. You sound as if you are eligible for Social Security disability and you should try for this. If a serious condition developed while you were in the military you can apply for disability retirement from the service I believe. Again try contacting one of the national service officers with any veterans organization. I am a member of most veterans groups and the major ones probably have the best service officers such as the American Legion, Disabled American Veterans, etc. There are too many to list them all, but if you call the VA central line they may be able to tell you where they are. You can call toll free at 800-827-1000. It may take awhile to get through, but you can leave your number on a recording and they will call you back.
If you need medicine for a service connected condition, you maybe able to get it from a military medical center if you were given retirement for disability. You have a lot of options, so it is very important for you to get together with someone who can advise you of your possible benefits.
You are correct there are a lot of twists and turns with the VA and the military and it depends on what happened to you, when it happened and if you were properly advised of your rights. Once again I strongly recommend you get in touch with someone who can provide this information. In addition to veteran service officers, there are often state agencies that provide information for veterans and even county agencies depending on where you live and which state you live in? Just look in your phone book under government agencies and see if any are listed for the state or county. Occasionally I see ads on TV about some type of legal help for veterans, I do not know any thing about them, but it maybe worth checking out? If you have a computer try looking up veteran advocates and see if there is something for you.
The sad part is that with all the resources there are for veterans many veterans have very little knowledge about them. Do Not give up, keep trying I am sure some one can help. Also I doubt the VA will cut you off from medication, but even if they did their are other resources out their. While there are a few bad apples in the VA, the great majority of VA staff are good people and will do what they can for you if you ask for their help. One thing I was told and I know works is if you run into a wall, ask the person their what they would recommend you do? If they don't know or won't help ask someone else, perhaps a nurse, aid or clerk will tell you when a doctor says they don't know? The big thing is don't give up until you have knocked on every door. Good Luck. 19lin

Jun 23, 2018 · Chronic Back Pain for Years in Spine Health

@lifetime I hope you won't give up, I had and have many problems with the VA. Now I just avoid them as much as possible. With years of experience I can suggest two things: one file a complaint with the VA Inspector General, if that does not help contact you Congressional Representative and/or both of your Senators. All of them have a staff person who does nothing but handle veterans issues. There is also a new program that allows you to go to a private doctor paid for by the VA, it depends on how long it takes to get an appointment and the distance you need to travel. You members of Congress can give you information about it. Also if you are a member of a veterans organization, or even if you are not, contact their national service officer's and ask for assistance. They will help any veteran whether your a member or not, to get the benefits you have earned.
The VA does not like me either, and I have advocated for the closure of most VA medical facilities and have them replaced with a type of veterans insurance, free for disabled veterans and low cost for all others including their families. That way a veteran could go to any doctor near them for assistance. Too many have died trying to get help from the VA, please keep on trying. The VA was restricted on giving pain medicine by act of Congress a couple years ago and now with the new rules coming in January, no one or almost no one will be able to get pain medicine stronger than 90 mg equivalent of morphine that is on Medicare or similar programs. If they follow through with this it will mean many now getting relief with be in nearly unbearable pain, my self included. Good luck I hope you find relief. 19lin

Apr 30, 2018 · Politics of Pain in Chronic Pain

Add on: another good article on doctors and pain is located here: https://theconversation.com/why-its-so-hard-for-doctors-to-understand-your-pain-93526
It not only shows how red heads react to pain meds (Yes I am or was a red head, its now gray) it also discusses some of what doctors are up against when working with pain patients. 19lin

Apr 30, 2018 · Politics of Pain in Chronic Pain

Congress is now taking up Opioid issues with a bunch of new bills. https://www.medpagetoday.com/washington-watch/washington-watch/72588?xid=nl_mpt_DHE_2018-04-30&eun=g1223246d0r&pos=0&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%202018-04-30&utm_term=Daily%20Headlines%20-%20Active%20User%20-%20180%20days This article gives some information on what is happening so now is the time to write your Representatives and Senators again.
President Trump has indicated he will back the new requirements of limiting Medicare and Medicaid from paying for 90 mg of morphine equivalent units for 7 days. Over that the pharmacists must call the doctor to talk about the patient and their real needs.
In my opinion this is just undue harassment of all involved. I know pharmacists will call doctors anytime they feel something is out of order with a prescription they do not need to be ordered to do so and doctors have a lot more to do than be on the phone with the pharmacists. All this means is that pain patients will loose. 19lin