I wish I could give you some answers other than you are not alone. It is possible that things will change, my doctor told me not to get too excited yet as many people disagree with these changes and he said to wait to see if it all happens. The only thing I can think of is to leave this country and try to go to one that has better laws that will allow a continuation of treatment. If you have a good relationship with your doctor ask him/her what they would do if they were in your shoes. Also a letter writing campaign to your elected officials that presents your position. Respectfully ask your officials what they would do in your place. Make sure to point out all the different types of treatment that you have tried that did not work. If you can make them see it from your position they may change. Do not threaten self harm or you may find some authorities at your door with a straight jacket and most elected officials already know that chronic pain suffers have one of the highest suicide rates in the country.
In addition to writing officials yourself ask others who understand your position to write their officials for you. If moving is possible for you then say that, since most officials do not want you or me taking our social security and pension money to some other country to spend it. There are web sites that provide information on countries that are good retirement sites. There are many Americans who move overseas for retirement since in the right country their pension and social security goes a lot farther. There are web sites that provide information on overseas retirement locations that welcome Americans.
I know this may not be much help for you, but all of us that use strong pain medication to lead a more normal life are in danger and we need to do what we can to convince others that the proposed rules will not help anyone. Good luck and keep trying. 19lin