About

Health Interests
Autoimmune diseases, Bone, joint, and muscle disorders, Caregivers, Chronic pain, Healthy Aging, Healthy Living, Heart and blood vessel disorders, Immune disorders, Men's health issues, Mental health disorders, Neurology (brain and nervous system), Other

Posts (4778)

24 minutes ago · Bladder Cancer: Finding a Specialist in Kidney & Bladder

Hello @texascitylady, Welcome to Mayo Clinic Connect. Are you able to share a little more about your diagnosis of bladder cancer? Are you looking for a specialist in Louisville because you are local to the area?

Here are some major cancer centers in Louisville to call.

University of Kentucky Markey Cancer Center: https://ukhealthcare.uky.edu/markey-cancer-center/cancer-types/bladder-cancer
Norton Healthcare: https://nortonhealthcare.com/services-and-conditions/cancer-care/services/bladder-cancer/

I'm not sure it's an option for you but Mayo Clinic Rochester would be a great choice if are able to travel. If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

49 minutes ago · Other causes of failed PEth test for alcohol abuse? in Mental Health

Hello @slw2227282, Welcome to Connect. It's hard to believe how the PETH test can be still be used after so much attention and false positives. Hopefully, something can be done.

@toolsd posted an article that might be helpful in an earlier post and may be able to offer more suggestions or help.

Recently written by Dr Skipper.

https://www.centerforprofessionalrecovery.com/specificity-of-phosphatidylethanol-as-a-marker-for-alcoholic-beverage-consumption/

@mllangan1 aslo shared an article in an earlier post and may have other information or suggestions.

Phosphatidylethanol: The Potential Role in Further Evaluating Low Positive Urinary Ethyl Glucuronide and Ethyl Sulfate Results:

https://cdn.prod-carehubs.net/n1/748e8fe697af5de8/uploads/2020/02/PEth-Article-in-ACER.pdf

@slw2227282 is your husband going to any support meetings where he may be able to talk with other people that had similar experiences?

1 hour ago · Neuropathy in feet and limited toe movement? in Neuropathy

It might not hurt to call the office where you make appointments and just ask them what their policy is for responding to messages on their patient portal.

1 hour ago · Neuropathy in feet and limited toe movement? in Neuropathy

@plbelanger are you using the Mayo Patient Portal? I believe their goal is to respond to secure messages within two business days though, depending on the question, you may get your response sooner. I've usually gotten responses within 1 day, sometimes sooner.

Connecting through Secure Messages: https://connect.mayoclinic.org/page/chest-surgery/newsfeed-post/how-to-connect-with-your-care-team/

3 hours ago · Scleroderma, Limited in Autoimmune Diseases

Hello @sickirishlass, That's great news that you get to see the doctor July 28th. I am not familiar with CellCept (or mycophenolate mofetil) but found an article that discusses the use for Scleroderma patients.

How Can CellCept Help Scleroderma Patients?: https://sclerodermanews.com/2017/06/14/what-is-cellcept-and-how-could-it-help-scleroderma-patients/

19 hours ago · PMR and the new Shingles vaccine in Polymyalgia Rheumatica (PMR)

@drtiminaz, It sounds like you have a pretty good plan for tapering off of prednisone and it's going well. I've had the hand cramps but mine are more associated with my carpal tunnel I think. I've not seen the small blisters you are describing but do believe you may be correct about being a side effect of the prednisone. Maybe other members can share their experience. I did find an article that talks about it.

Excerpt from article linked below — "Long-term use of strong steroids can cause widespread purpura and bruising, normally on extensor surfaces of the hands, arms and thighs. It is caused by atrophy of the collagen fibres supporting blood vessels in the skin. A similar appearance is also found in senile-type purpura."
— Purpuric Rashes: https://patient.info/doctor/purpuric-rashes

Have you mentioned the symptoms to your primary care doctor? It might be a good idea just to discuss the symptoms with a doctor or pharmacist.

1 day ago · Successful litigation for bad TKR surgeon and/or faulty device? in Joint Replacements

My surgeon used the DePuy Synthes Attune Knee system and I have been quite happy with it although it's only been since April 2019 since my TKR if that makes a difference. I would think that bone cement also plays a big part as well as the surgeon's skill (IMHO).

1 day ago · Prednisone and cholesterol levels in Polymyalgia Rheumatica (PMR)

@jth4d, I agree with @virginiaj. My Mayo primary care doctor always does my annual labs with a fasting blood sugar and fasting lipid profile. I have to limit the types of food I eat for my previous evening meal and eat nothing after 7 pm. They usually schedule my fasting labs first thing in the morning so I can eat afterwards. Here's some information I found that may be helpful.

Cholesterol test: https://www.mayoclinic.org/tests-procedures/cholesterol-test/about/pac-20384601
Eating to Lower Triglycerides (PDF): https://www.uwhealth.org/healthfacts/nutrition/361.pdf

I stopped drinking all alcohol due to other health problems and it is one of the things that can raise triglycerides and sugar levels.