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Mon, Mar 9 3:03am · Numbness All Over: My story... in Brain & Nervous System

sorry to hear about all your problems. I understand about all test coming back negative. I have Fibromyalgia, had a small stroke, my right foot leg goes numb said to be poor circulation and compression socks do help but numb around mouth/nose no help and it is not all time. I had a rash on both forearms itching very bad tiny bumps then spread to area raised spot with clear white little drainage. Tried lotions, creams, antibiotics, a skin biopsy with no treatments working or answers from doctors. I thought the rash was shingles doctors said no because it was both arms and no place else. A friend thought I got poison eve and said take a shower head to toe with orginal Dawn dish soap. For 88 cents couldnt go wrong and they treat wild life animals with it couldn't do much harm. After one shower itching was reduced-more showers it began to dried up and disappeared. Sorry this got long. Good Luck at finding anwers.

Sun, Jan 5 1:27pm · Smelling Cigarette Smoke in Brain & Nervous System

i developed smelling smoke after I had a stroke in 2015. I still get the problem and doctors are not concerned. I have them say it could be a worst smell. when it happens to me it also takes away my energy and I am short of breath more. I also have voice changes when it happens but not all times and I had voice problems before stroke. The voice started when the doctor decided I had fibromyalgia. Good luck getting it gone- it is annoying.

Dec 2, 2019 · Referral to Mayo declined for Autoimmune or Unknown Condition in Autoimmune Diseases

Thank you. I have been to that office and that is where I was told have to have who I was given (NP) for one year. This can go on and on.

Nov 30, 2019 · Referral to Mayo declined for Autoimmune or Unknown Condition in Autoimmune Diseases

mayo clinic has changed a lot since 2010 and treatment for illness have changed. I have fibromyalgia and had a stroke. I am dealing with a kidney stone now with a super fibromyalgia flare up. My local doctors canceled kidney stone surgery because of my short of breath, heart palpation, and stroke history. The fibromyalgia support is you will always have flare ups. Returned to mayo but my general Internal doctor is in another dept and I was assigned a N.P. We don't get along and I have asked to change but was told have to wait one year. WHY? I was taught not everyone gets along and can talk to everyone. So WHY do I need to wait one year for stone to get bigger, more stress, more pain, and more diculities with surgery later. How do I get better help now?

Nov 19, 2019 · Autoimmune? Undiagnosed and don’t know where to go next in Autoimmune Diseases

sorry about your health I could not read it all but would like to responded. I feel the pain I have dealt with all but not at same time frame. I have a body that doesn't recognize pain mostly symptoms and my stories can get long but I had surgery today for something that started with multiple bathroom trip at work last two hours of shift couldnt leave. Had 4th ER visit this month with sparms and or short of breath and stroke symptoms. I had a stroke small one in 2015 two days after a endoscopy and colonoscopy that came back normal along with all other test since 2009 for ms, heart, voice, swallowing,pulmonary, panic attacks, migraines,for ticks,allergies.2010 diagnosed with fibromyalgia without the so called pain. believe it is correct pain is getting recognized more and have added things to it.
Go with your gut feelings and push forward one deep breathing at a time. Watch out for older equipment reading your test and I don't see where they have used DYE to see thingsand look at who dose the readings. Get a doctor (good luck), that will listen to your whole body and not two sec here and there.
My gi troubles started in June and have not let up much -created super fibromyalgia flare up current dr dosen't belief it or a stone could cause all my problems. my surgery today was for a kidney stone never had one before. it was on first ct with dye in July never told me about it until got to GI aug.when a she said needed fix before colon issues fix. Other doctors don't think this stone can be problem. Well long story 6th kidney dr today could not get stone was going to place two stent then go back for it and stone 90 days from today. plans Changed again pee hole(sorry) to bladder to tight to get tool up got one stent and next surgery for Dec 11 with possible of finish this.
Hugs gently and purple butterfly angle for your silent illness.

Oct 24, 2019 · Appreciation from (and to) A Recent Graduate in Living with Mild Cognitive Impairment (MCI)

I am/was interested in this habit program and I am from Illinois and currently seeing doctors at Rochester MN . Today I asked about this after seeing information here and remembered when I saw flyer in dept of Psychiatry and psychology which I thought would of been more in the neurology dept. They have canceled it here but still have in Florida. They said other clinic are using similar techniques or there ideas so you may want to check out different depts and places. I currently use a calendar in kitchen for when take med; one in bathroom for showers, my colon issues, and note some cleaning chores on it; and carry one with me for work hours, doctors, and events. Mayo said that is almost but with only one calendar don't miss or overlap things. The person I talked to didn't know why it was canceled program. Good luck.

Oct 8, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

great video how do I get the next ones? Thanks

Oct 2, 2019 · Leg pain after ischemic stroke interrupts my sleep: Suggestions? in Stroke & Cerebrovascular Diseases

maybe compression socks doing day because you may not be walking and on feet as much now. Helped my numb achy tried legs for a while after I had vein ultrasound. it showed i have some veins making new routes(my words can't remember the dr.) Now the socks and not helping the best so Dr can now prove to insurance to have vein surgery it is not for looking pretty. I am waiting on it now. Hugs.