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Posts (4)

Apr 6, 2016 · New to Epilepsy!! in Epilepsy & Seizures

I have chronic daily migraines, 24/7, and like I wrote initially, I’ve been living with it every day since 2002. I’ve seen a lot of doctors, been to lots of clinics, and of course tried every treatment option suggested under the sun. I think I might have missed something in your post – but it sounds like he is being assed for a psychiatric diagnosis in effort to explain physical symptoms. If you don’t mind me asking, what was it that made you, your family, or your medical team to investigate a mental health cause? I ask because – well, for one, I do not believe there “physical” health, and that’s one thing, then there is “mental” health, which is a different thing. It sounds like the science on this is catching up to what many of us have always known. Its true that physical health is seen as more – well, medical, – but because of that, mental health is seen as separate, as its own genre, with its only list of specific symptoms, to meet specific critic, to determine a specific diagnosis. Sorry – I’m going on and on.
I’m just wondering what inspired his medical team to assess for a mental health cause?

Apr 6, 2016 · New to Epilepsy!! in Epilepsy & Seizures

That sounds so frustrating!! He has all of these physical, concrete, actual symptoms, yet they have no way to physically, concretely and actually explained what happening with the body.

Apr 6, 2016 · New to Epilepsy!! in Epilepsy & Seizures

Wow, thank you @debburrington. Very interesting. At the time of (what I consider to be) my second seizure, I was ON a Topamax program, but increasing dosage weekly, but slowly. A couple days before the the incident, I had increased my Topamax from 50mg to 100mg – I had difficulty tolerating the side effects so that was a big jump. I always felt that Topamax played a role in the second episode, but I attributed its role to the effect it had on my short term memory: i remember that morning having a headache, and feeling stressed about getting my kids in the car, go to school. At that time, I took both Excedrin and Advil for pain control. I have pieced together the event of that morning and I remember thinking, “oh I have such a headache, here I’m going to take the advil and exedrin now” then couple minutes would pass, and I would be yelling, “kids! lets get going, we’re already late to school!” then I remember thinking, “man, I have such a headache, here I’m going to take the advil and exedrin now.” At the time, there was no known aggregate that caused the incident but I always wondered if I “rinsed and repeated” with the advil and exedrin because I simply forgot I already took it. But your story helped me challenge that assumption – my theory on this was never verified by a doctor, I suppose I just wanted to blame anything for what happened. Perhaps the Topamax had some impact.

Thank you!! I see my neurologist next week and I will ask about this.


Mar 18, 2016 · New to Epilepsy!! in Epilepsy & Seizures

I am a 38 year old woman, married, mom of two daughters (9,10 respectively). Have suffered with chronic daily migraine since 2002. Very recently diagnosed with Epilepsy. I don’t particularly like neurologist who I was assigned to — I’m on my 3rd medication (Lamictal?) and I have so many questions. (I’m looking for a new doctor!)

Right now I feel like I’m living in fear of my own brain. This last seizure came out of the blue, while I was getting my daughter ready for dance class. Since that day (Jan 25, 2016) I have had 2 abnormal EEGs.

I feel like I need some — guidance, advice support. Would love to hear others experiences – especially from those who have been diagnosed with epilepsy in adulthood.

Thank you!