Hi, I hope that you find that the inspire site helps you. Hope 2017 is a better year for you June(emeleen)
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.Hi If you google AGMD GI Motility Disorders Support Group & Community – Inspire.it should come up/ It stands for The Association of Gastrointestinal Motility Disorders support group and discussion community. It is a wealth of information regarding treatment etc and also allows you to vent and recommends doctors. There is a box on the right had side at the top where you can type in your questions as well and it will give you posts from a few years ago. It is world wide and covers numerous conditions and is a wealth of iinformation. Hope you have some success joiining the group. June
Thanks very much for your reply. No the doctors in Australia aren’t interested in gastroparesis either. Quite a few of the tests for digestive issues aren’t available in Australia which makes it difficult. Yes we get motilium (domperidone) over here. I stopped taking it as I was diagnosed with rapid gastric emptying but no one will listen. I did take them but my treatment has been one of total confusion but many people find them helpful. I wish I could smuggle them into America for you as I know there are a few people trying to get them.
Thanks very much for you reply. Pleased you have found something to give you relief. My colon is the problem now and my stomach isn’t working properly. The GI I saw think the nerves have been damaged. Do you ever look up the Inspire Group. June
Hi, I didn’t know so many people had had this operation. I had a very large para oesophagel hernia repaired about 3 years ago and have had digestive problems ever since. It was took 7 hours to repair and contained the majority of my stomach and also transverse colon. Now having problems with my colon and slow bowel motility. Was diagnosed with gastroparesis to start with and now rapid gastroparesis. Have nod idea if my vagus nerve was damaged as had a fundoplication was well.I am also not able to vomit The only symptoms were not being able to eat or breathe properly. My upper abdomen is full of adhesions from the operation. I live in Australia and have not had much help from any GIs. The only suggestion has been to get my colon removed.Sorry I am not handling it at all well.but pleased that other people have had some relief.