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Posts (3)

Mar 15, 2016 · Anyone with Marfans Syndrome? in Heart & Blood Health

Thank you very much, but saying you’re sorry doesnt help the matter at hand. I sent my congressman an e-mail and i’m certain it will be placed on the back burner i just am overwhelmed. This has beeon going on for several years and nothing is being done and nobody cares enough to help. smh…

Mar 15, 2016 · Anyone with Marfans Syndrome? in Heart & Blood Health

Anyone with Marfans Syndrome on this thread please? I am looking for support groups & about to lose my mind! I am the primary care giver to a young gentleman who lives in my home who has several disabilities & I cannot get help from anyone, it seems like every place I go I get the door slammed in my face. Plz help !

Mar 15, 2016 · Caring for young person with FAS, Marfan's & learning disabilities in About Kids & Teens

I am the primary care giver to a young gentleman living in my home who has marfans syndrome, fetal alcohol syndrome. has learning disabilities. I am looking for some type of support groups, i cannot get any in home assistance from his insurance. What can I do ????