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Mar 18, 2016 · Diagnosed with AL Amyloidosis. What can I expect? in Blood Cancers & Disorders

I am fortunate to live an hour away from Rochester. mn. Am having the
attention of great Amyloid specialists.

Mar 15, 2016 · Diagnosed with AL Amyloidosis. What can I expect? in Blood Cancers & Disorders

TMoustis:

Waiting to see what regimen of meds I will need to take. Waiting to see how
much heart involvement there is.
My dizziness is coming from a decrease in blood pressure when standing – in
a test yesterday, My bp was 134/62
while lying down and it dropped to 60/20 upon standing.

I’m not eligible for a stem cell transplant because of my age – 70+.

Jenrico

Mar 14, 2016 · Diagnosed with AL Amyloidosis. What can I expect? in Blood Cancers & Disorders

Thanks Gaettan, encouraging news. I have shortness of breath, dizziness,
extreme fatigue. Massive amount of protein in urine. Anxious to get started
with treatments.

Mar 13, 2016 · Diagnosed with AL Amyloidosis. What can I expect? in Blood Cancers & Disorders

Thanks for a quick response –

Discovery of excess protein in my 24 hr. urine collection. (2168)
Extreme fatigue, shortness of breath, dizziness upon standing.
Have had bone marrow biopsy, echocardiogram, ekg, chest xray, numerous
blood tests.
Have seen Drs. Leung, Erickson.

Mar 13, 2016 · Diagnosed with AL Amyloidosis. What can I expect? in Blood Cancers & Disorders

Diagnosed with AL Amyloidosis. Would like to hear from someone about what to expect. Have not started treatment yet.