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Posts (3)

May 11, 2016 · Intermittent pain in my legs from knees down. Unable to stand in Bones, Joints & Muscles

Hi Judy..i’m so sorry to hear about the leg pain & weakness you are experiencing in your calves. Everyone has posted great suggestions to pursue. I would also add that you see a rheumatogolist — i had intermittant (relapsing-remitting) pain & weakness in both legs/calves that turned out to be lupus. It took many visits to various orthopedic doctors, neurologists, spine specialists, PAD specialists, pain specialists, etc. & over 3 years to finally get a diagnosis –and eventually some treatment. I only wish one of my doctors had suggested seeing a rheumatologist earlier. . I hope you find an answer and some relief soon

May 8, 2016 · Nerve damage and other issues - no root cause in Spine Health

I am just wondering — Did you ever get a diagnosis?

May 7, 2016 · Nerve damage and other issues - no root cause in Spine Health

Hi –
I’m so very sorry to hear about what you are going thru.
I am new to this group — but I had similar gradual deterioration of my ability to walk (which worsened in my 50’s), while all my lab tests, EMG, MRI, spinal tap,etc were normal. I saw neurologists at the Univ. of MD, Cleveland Clinic, & other medical centers — without finding a diagnosis. I was put on Lyrica, cymbalta & elavil to help with the neurological pain– but these offered little help.

After 3 1/2 years, in Jan 2016, i was referred to a Rheumatologist who ran a host of lab tests & i learned that I have CNS Lupus. (It is very difficult to diagnose.) It doesn’t sound as tho you have seen a Rheumatologist yet, but i would suggest that you try to see one as soon as you can. They are extremely knowledgeable about many different kinds of autoimmune, muscle & connective tissue diseases — several that present with weakness & neurological symptoms (as mine did). I wish you much good luck & improvement in your condition! Please keep us posted.