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Tue, Aug 20 11:43am · N-A-C and apo-Lactoferrin helping MAC and Bronchiectasis in MAC & Bronchiectasis

To Eileen and to all of my Mayo Connect Family – as to taking NAC (the same one you take) – I have been taking this since January 2019 and when I went in for my usual breathing test in April, I was up 30% from the last 3 tests. I was amazed as the NAC was my only "new" supplement. Clearly it has had an affect on my lung capacity. My lung doctor at Brigham and Womens in Boston told me to keep taking it ( I take two a day); he was aware of NAC but really did not have a lot of information on it for those with MAC, bronchectasis and psedemonas ( all 3 of which I have had or have) . I know doctors at one of the major hospitals in San Francisco have just begun studies on NAC with patients with lung issues – It will be interesting to see how that tracks over the next few years. I have decided to take it for the rest of my life. As to the coming winter ( when I usually get very sick with pneumonia from catching colds from little children) I will be interested to see if I get as sick as I was last December and January, before adding NAC to my regimen. I take one in the AM and one in the PM – I open the capsule and dump the powder into a small glass of smoothie – it has had no side affects for me. I still take 2 puffs of Symbicort twice a day and one puff of Encruse daily. I have another breathing test later this month and I was waiting to see if my lung capacity was still 30% better before writing to the group. Thank you Eileen for this post. I will let you know more after I have the test in late August. Pam

Fri, Jan 25 12:18pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks so much for this info on taking Clear Lungs. I did call the company and they said it was fine to mix the powder in yogurt or applesauce, so I have done that. I will hope I see a difference soon! Best to you, Pamela

Sun, Jan 20 9:33am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

thanks so much Nicole for the information on Clear Lungs… is it possible to go down to one capsule a day if feeling well and do you take it always, whether sick or not? Also, can I put the powder in juice? I have a hard time with large capsules. Pamela

Sat, Jan 19 8:45am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Can anyone give me some information on Clear Lungs, what brand, what form (liquid or pill) and if you use it only when sick, or all the time? Thanks, Pamela

Wed, Jan 16 8:45am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello – I have a question about taking "Clear Lungs". I would like to try it. Can anyone tell me the brand they take, if it is liquid or in pill form, how much, how often, etc. I was told there were several companies so I wanted to be sure to use the brand that some of you say has been quite effective. Thanks, Pam

Oct 17, 2018 · use of Incruse for MAC and bronchiectasis in MAC & Bronchiectasis

My use of Incruse has helped my shortness of breath. I have only been on it a month and I was considering stopping because maybe I should save it for later, when my breathing gets worse. I was treated sccessfully for MAC two years ago with the 18 month regimen of the 3 big drugs. I have had pseudemonas (now cleared up) and I have the fungus aspergillus, which may always be present. I take Spiriva twice a day and that was all I was taking for some years. Even with that, the shortness of breath began early this year for the first time. I do not like adding in meds if I do not have to. I would like to go off the Incruse to see if my breathlessness comes back. It seems no one out there has knowledge of this drug, so I gather it is on the newer side. It is used to treat COPD but that is not what I have. I was diagnosed with MAC, bronchiectasis, pseudemonas and aspergillis, all of which have damaged my lungs. I can get pneumonia easily ,if I catch a cold, so have to stay away from sick people! Pamela

Oct 15, 2018 · use of Incruse for MAC and bronchiectasis in MAC & Bronchiectasis

Has anyone taken and stayed on this once a day inhaled medication? I take Spiriva with it as I was short of breath and my lung doctor recommended that I add it to my regimen. I have been less breathless but wonder if I could go off of it to see what happens. I have been on it for a month, with no side affects. I would love to have some feedback from anyone who has been taking it for awhile. Thanks, Pamela in MA

Jun 25, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello Terri – this is Pam … I sent an email to the group a few days ago about my use of Levaquin – and had some questions – I can not see that it got posted. Do you know if it did? Thanks so much, Pam