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Sun, Jun 21 1:19pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

The prednisone really did not make a dent on my breathlessness but glad I tried it, as it is supposed to reduce inflammation. I did send in a sputum sample last week and just today got the news that I have a bacteria called "Achromobacter". This may very well be the culprit. Has anyone out there been diagnosed with this? The best drug to treat this is Bactrim from what I understand. If anyone has anything to offer in the way of experience or information on this bacteria, please let me know. Thanks, Pam

Wed, May 13 7:45am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

After writing my last message I went online to read about using the albuterol – what I found was that it does NOT clear the inflammation; it just acts as a temporary fix to shortness of breath. So I think I am going to go with the prednisone and only use it for the two weeks, then see where that takes me. Pam

Wed, May 13 7:30am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you everyone for writing down your experiences with prednisone.. I am hesitant to use it, even for two weeks. I might try using my nebulizer with albuterol first and see if that brings any relief. I will let you know. Just want to say what an amazing and supportive group this is and how important you all are to me! Thank you for taking the time to write. Pam

Tue, May 12 9:26am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

This is about taking prednisone to clear up what might be inflammation in my bronchial tubes… I have MAC, bronchiectasis and pseudemonas but those are all under control as of today. About 6 weeks ago, after feeling great for many months, I noticed I was getting breathless with very little activity. I am taking Lung Health and NAC along with Vit D. This came out of nowhere. Finally spoke to my lung doctor who thinks it might be this inflammation and he wants me to take prednisone for two weeks to see if that will help. Has anyone taken prednisone? Can anyone give me insight as to going this route? I am not coughing, I feel well in all other regards and at rest my oxygen is at 96. Thanks so much, Pam

Mon, Apr 20 8:40am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello everyone – just wanted to check in and say how important it is for me to read the comments as they come in, especially at these unsettling times. You are all amazing, and so helpful! I am staying well, and am in isolation; my daughter gets my groceries and drops them at the door. My regimen, aside from inhalers is taking 2 NAC 600 pills daily, and 2 Clear Lungs pills daily. I send everyone love and best wishes for us all to stay well. Pam

Mon, Jan 13 8:06am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

THanks for this info Sue: so if I took off my shower head and boiled it, would that get rid of any MAC? If so, this is a better solution than having to replace it. Pam

Sun, Jan 12 8:44am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello and thank you Sue and others who replied to my question about using a Britta filter: my tap water is from deep water wells run by the town… so it is municipal. Thanks to your answers I will not longer drink the water cold from the Britta. However, if I pour it in the tea kettle and bring it to a boil , do you think it is safe? Or should I boil it twice? Pam

Tue, Jan 7 7:58am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello – I have a question about using a Britta water filter. Is there any reason NOT to use the Britta? Pam in Sudbury, MA