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Posts (24)

15 hours ago · Chiari Malformation in Brain & Nervous System

To everyone out there who has Chiari Malformation of any kind, please do research on the disease and see if the surgery is right for you and your family. Ask lots of questions, and demand answers.

We didn't and here's my post of why we should have dug deeper and got answers, instead of listening to a doctor who likes and has a Gods complex.

My husband who is now 37 had his first surgery at age 33. The shunt stayed in his head for 6 months and became infected, and he had to take really strong antibiotics to get rid of it. Once the infection was gone they placed another in his head, a couple of months went by and his mood started changing towards his family. He had to get that one replaced because it stopped working and the doctors claim that's why his attitude changed, but when he had it out I had my loving husband back. Now he has another one in and his attitude is worse now than before. He has pain and itching at the site area, and the doctor will not listen to the stress I am going through as well.
Everyone might think I'm being selfish or insensitive about his pain. I would love for him to be pain-free, and to be the loving caring man I know he is but this thing (shunt) that's in his head has really changed him, he has no regret or remorse. At times, he doesn't treat or look at me like his wife I'm more of a stranger to him.

Now I'm waiting for his doctor to contact him for further testing before I call a Lawyer to see if I can force the doctor's hand.

My husband doesn't remember exploding, or how he treats people, and when I try to explain he starts crying and says some crazy things like….."I want to leave him, or I'm treating like a baby," and a lot more. My husband needs help with this shunt to see what its truly doing to his brain, we (wife and step-child) needs help with the stress we are going through due to his mental change.

Please, please get answers for all your concerns, before you think about doing any type of surgery.

17 hours ago · Adult Life after a Traumatic Brain Injury (TBI) in Brain & Nervous System

I have to say "WOW", I have found someone I can truly relate to without someone calling me crazy. My experience started 2 1/2 years ago. I was helping my husband and friend unload a trailer full of split wood, and my husband threw one and I raised up at the same time, and the wood hit my right temple.
Now I get angry over stupid things, and I have no energy to do anything. My family would say I have done or said things that I truly don't remember, so now I sit in my own corner, and only try to speak when needed because I'm scared of the outburst of anger and not knowing the cause.
I went to counseling and they put me on medicine, but all the medicine did was make my symptoms worse, so I told the doctors I was taking any more of them. I'm trying to go back to school, (online) to see if staying to one thing while others here at home take care of everything will help. My husband tells me he understands why I'm ignoring everything and everyone and he wishes he could help, but he also has issues also with a shunt in his head that is changing his personality, which doctors tell us it's all in our heads and nothing is wrong with us and we all just want to have something to complain about.
So I stopped talking to the doctors, and pray every night for my symptoms to get better, as well for my husband to get the help he deserves.

Thank you again for this post, I know it wasn't easy for you to post this. It helped me and left me to know I'm not alone.

17 hours ago · Dealing with symptoms from unknown cause in Just Want to Talk

Hello, My name is Laura and my daughter has the same issues. Sorry to hear it's happening to you as well. She has a little boy, her first one and she's scared to have a second one in the future due to these issues. The doctors told her it was her hormones that are missing with her because now she has to get herself and her body used to not being pregnant.
I only had issues about being thrown off balance or into something. After a year, of giving birth my symptoms went back to normal, if your symptoms persist, please get a second opinion. Systems like these should not be ignored, you might have a pinched nerve or something else if an OB/GYN can't help try a chiropractor maybe it might be something simple.

I hope you get better.
Laura Walters

Feb 12, 2018 · Post-Intensive Care Syndrome (PICS) - Let's talk in Intensive Care (ICU)

I hope to get some help, I have been getting a lot of pressure in my head which doctors says I have pressure headaches but they don’t go away, it just sits there not moving….feels like a rock laying and waiting for me to miss up.
I have trouble concentrating and I’m also in college on line, and with this problem I have to get off the computer till the pressure subsides. Then I have days that I forget where I put something. Example: I would lay my glasses on my desk, and they won’t be there, and after I’m done looking for them, they would be in front of my computer.
This becomes a nuisance, and I can’t remember anything that happened after 2012, any thing before that I’m good, now I have to right everything down.
Can someone help me to figure out what’s the cause of this.

Dec 16, 2017 · 17 year old daughter with endometrosis in Women's Health

Thank you, for you help.

Dec 16, 2017 · 17 year old daughter with endometrosis in Women's Health

Thank you for the feedback,
The doctor I seen says the DNC won’t work because the endometriosis has spread to my overy (I only have one left, and had a tuble) which my card won’t pay for a reversal and the fertility cost so much. The more I ask question I get denigned because I’m 45 years old.

Dec 16, 2017 · Chiari Malformation type 1 in Brain & Nervous System

I’m sorry I missed understood, is this do to your cerabellum? I want to make sure I can give you some opinions without giving you the wrong ones.