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Posts (8)

Mar 10, 2016 · Diagnosed with HOCM last year. May be time for surgery in Hypertrophic Cardiomyopathy (HCM)

Hello everyone, Well I had my new Cardiologist appointment and it went well. Dr. Matthew Trojan is now my new Cardiologist. He is Great. Were going to try and put off the surgery for as long as we can since the medicine is working for me for the most part. I can also exercise at PeaceHealth hospital in Springfield, I will have monitor’s on me, and hopefully I will get healthier when the time comes for me to need surgery, he also said he will send me to Mayo Clinic because PeaceHealth doesn’t have the experience needed. I really like this Doctor he is very through and I understand more now. I don’t know how long this medicine will work for me. As it stands now the medicine works about 80% of the time and I still run out of air and get dizzy, I guess I just have to take it easy till then. 🙂

Feb 20, 2016 · Diagnosed with HOCM last year. May be time for surgery in Hypertrophic Cardiomyopathy (HCM)

Don’t know anything until I talk to the second opinion DR. in Eugene or, if he says he agrees I need the surgery then I will contact a surgeon.

Feb 20, 2016 · Diagnosed with HOCM last year. May be time for surgery in Hypertrophic Cardiomyopathy (HCM)

Taking a train is definitely an option. I’m glad you suggested that. Sometimes it’s hard to think past the next dr apt. lol and ty for caring.

Feb 20, 2016 · Diagnosed with HOCM last year. May be time for surgery in Hypertrophic Cardiomyopathy (HCM)

That’s what I did, I read as much info as I could find online, That was the wrong thing to do. scared me for sure.

Feb 20, 2016 · Diagnosed with HOCM last year. May be time for surgery in Hypertrophic Cardiomyopathy (HCM)

ty lapadelford, It is so nice to see people out there like me, altho I wouldn’t wish this on anyone. They said I might have to have my mitral valve repaired at the same time they do the myectomy. but I have hope that isn’t the case. Sounds like your feeling better? I am so happy. 🙂 ps you are so young to have had to have the operation already, but from what I hear they say it is better when your younger?

Feb 20, 2016 · Diagnosed with HOCM last year. May be time for surgery in Hypertrophic Cardiomyopathy (HCM)

Hi, sorry it’s been awhile since I talked on here, didn’t know I had some more responses… I think I know what you might be talking about, the last time I had an MRI it showed something the dr said was 78 % not sure what that meant but that may be it? That’s kind of been on my mind since then, wonder if that’s bad or not. The year before it was 64%. so don’t know, but I will ask the DR. when I see him on the 25th. Things here have been pretty crazy. A lot of up’s and downs. My emotions have been crazy. Was supposed to go to my sisters bridal shower today but I couldn’t sleep at all last night, maybe 4 hrs and the drive is almost 2 hours long, I have such a hard time sleeping, if I cant sleep my heart feels so much worse, but when I do sleep well it feels better. been crying all day I feel so alone. I have a huge family but I feel like nobody cares. Probably just being stupid and sorry for myself. It dose’nt help that I am alone out in the country. ty so much for the information and I will ask the DR about all that. 🙂 ps went for a walk around the field today, slow going but it seemed to help.

Feb 9, 2016 · Diagnosed with HOCM last year. May be time for surgery in Hypertrophic Cardiomyopathy (HCM)

Thank you all for commenting on my post, I would contact a surgeon at the Mayo clinic but I live in Oregon and I fear traveling would be very hard on me, and flight would be impossible. I have an appointment with a cardiologist on the 25th in Eugene Oregon for the second opinion, and if he agrees with the first opinion then I will locate a surgeon who has a lot of experience in this kind of surgery. What I fear is deciding to have the surgery. I have terrible pain and dizziness and my left arm is sore, some days I can walk out to the barn with not many problems and the next second I cant even walk three steps. My eyes are constantly red and puffy, and sometimes I’m not even crying. My husband is a truck driver and is gone most of the time. We own a farm out in the country, other then my German shepherd I am alone most of the time. I am on Metoprolol 25 mg, they tried me on 50 mg but my bp dropped to low. The medicine is working that it takes my chest pain away for the most part, but this past Sunday and Monday I had pain in my chest all day both days and it frightened me. I tried everything to help the pain, took apple cider vinegar, took a nap. laid on my right side. nothing helped. This morning I feel a little better, not much pain but my left arm is hurting and I’m still dizzy. I worry if I opt to not have the surgery I may have a sudden death heart attack and if I do have it, well From what I hear it’s never good to cut into your heart, you only have one. :/ I am so sorry for rambling on, I thank you all for listening and your feedback.

Feb 9, 2016 · Diagnosed with HOCM last year. May be time for surgery in Hypertrophic Cardiomyopathy (HCM)

Hello, I was diagnosed with HOCM last year. I have been told I may be approaching the time for surgery. The last MRI showed a 10% worsening in valve pressure. I am in the process of getting a second opinion. I have pain and dizziness and breathing is hard. I am scared. I worry if I have to have surgery something will happen. I know I shouldn’t but I do. I’ve had problems with my heart since I was a kid I am 54 now. I feel alone with this problem. I put on a brave face for my husband and kids but alone I almost feel defeated. I wonder if there is anybody out there that had this heart disease and if so are they ok and how did it go? Thank you all for reading this and I hope everyone who is sick to get well soon.