Its just so wonderful having a place i can talk and learn!
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Thank you so much for your reply.
I have looked at the pictures of this terrible disease, I have the same look and have had a small sore. The dermatologist is pretty certain this is the diagnosis.
All the other symptoms I’ve experienced in rare cases have been seen in LV patients. I’m wondering if the blood work will show an underlying condition. I’m terrified of getting the sores. I have another one starting and so far it’s still small. Mine is on both my upper thighs.
I am taking your advice and seeing my dentist.
I have been sick for so long and I just want an answer. And even if it is LV, I have that all awaited answer.
The Dr put me on Pentoxifylline.
Thank you again!
Hi, I’m Vickie. I recently noticed this marbling on my upper thighs. Have extreme pain in my thighs, feels Like I’ve been kicked over and over again. I’ve had one small sore that only lasted a few weeks, and after reading the stories about them, I’m thankful and scared of when I get another one. I went to my dr he had no idea how to treat this. But over the past year I have been sick. I lost over 100 pounds, muscle and joint pain. Migraines and nystagmus developed, severe jaw pain. My dr , I’m sure thought I was just asking for pain meds which made me feel terrible. Then in December I get this very scary pain in my legs and felt so weak then the purple marbling. He sent me to a dermatologist who is certain that LV is the diagnosis and is doing the blood work and biopsy. After days and days of reading about this disease I had many of the symptoms for months before the skin changed. Has anyone else had this type of scenario? But I’m scared and feel alone. Anyone that has something to say I would greatly appreciate it. Thank you for reading.