I’m no help in terms of Mayo accepting Vet Choice, but that is disappointing, very disappointing.
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Welcome. I understand how overwhelming it is. I had a good diagnosis of HCM, but questioned the treatment plan so I went to Mayo for a second opinion. I have never looked back. They were thorough, they were compassionate and, most importantly, they know their stuff. HCM is a difficult disease because it behaves differently in every person who has it. Mayo has the knowledge, the equipment and the personnel to give you what you need. Like I said, I never looked back.
If your genetic tests show you have two HCM genes, is that indicative of a more severe form of the disease or more complications later in life?
Hello, and welcome, Tracey. I was misdiagnosed for 23 years, so I can relate. I agree, if you can find one of the HCM specialists in the UK, that is where you should be. You can check out http://www.4hcm.org and they can help you find someone. This disease is quite the challenge for those of us who have it, that’s for sure. It is so easily misdiagnosed and we, particularly women, get patted on the head and sent home. Been there, done that.
I presume you were gene tested and they found one of the HCM genes, correct?
Hi, Jeffer, I have hypertrophic cardiomyopathy and have battled depression off and on. My disease is also not as advanced as your son’s. but it is a difficult diagnosis to deal with. People don’t see the disease-we often look healthy which makes it even more difficult. We long for our old life and long to do what our friends do. I do take “chill pills” sometimes at night,though I try not to do that more than one day a week. All you can do at this point is be there for him, sit with him and hope he listens at some point. It’s a very difficult situation for you and for him. There is no one size fits all, though I wish there were!