About

Member has chosen to not make this information public.

Posts ()

Mon, Aug 12 2:24am · Return to work after a long absence: Building a resume in Just Want to Talk

I’m hoping to return to work, starting my job search. I’m awake tonight drafting my resume (curriculum vitae). This is who I am, if you don’t mind, can you provide some comments? Building a resume is hard.

This is me! Who are you @jakedduck1 ?

Tue, Aug 6 9:48am · Probable NPH...new & frightening frontier in Brain & Nervous System

in my journey with acqueduct stenosis and enlarged ventricles written on my charts… I came across the Hydrocephalus Association. There really aren't too many doctors that do that condition actually. I looked on the Hydrocephalus Association website and realized I had spoken to a few doctors not on this list. Just a friendly suggestion is to check with the association and see if you are seeing somebody registered with them. There are few places that treat adults is what I found, doctors listed only treat children born with hydro. This was a few years ago. I'd suggest initiating the request for the Mayo appointment, it may take 4-6 weeks to get in.

https://www.hydroassoc.org/

Tue, Aug 6 9:41am · Probable NPH...new & frightening frontier in Brain & Nervous System

@mcwoodham761 I love that, you are correct! I was watching a video on chicken hatching at McMurray Hatchery after I verified that the 60 Minutes video on NPH was still there – lol

Seeing the doctor is the most important thing, but I thought it was helpful to see some of those videos to get a better understanding of this hydrocephalus stuff. I felt better prepared to ask questions and understand what they were telling me. I wouldn't want a shunt.

Tue, Aug 6 9:07am · NPH (normal pressure hydrocephalus) in Brain & Nervous System

Hi, this came to me @Erinmfs , I think you meant @colleenyoung ? You can also send her a private message using the envelope icon next to your photo (by the appointment button).
Have a great day!

Mon, Aug 5 6:46pm · Probable NPH...new & frightening frontier in Brain & Nervous System

Well, you can request an appointment at Mayo, they can talk you through if you need a referral or not, referrals sometimes needed for insurance. my consult was with mayo's neurology team and a brain surgeon. It's a quick flight into Rochester really.

Mon, Aug 5 5:05pm · Probable NPH...new & frightening frontier in Brain & Nervous System

Your going to the right place if you'e waiting for a Mayo neurology appointment! I have ventriculomegaly written on my EHR, scared me too, but a shunt was not recommended. They'll give you a thorough workup and make their recommendations at your appointment. I was told that I had to have dementia before qualifying for a shunt procedure. I really don't want a shunt! I found a 60 Minutes YouTube video about NPH, fairly old, describing a couple patients getting a shunt and being misdiagnosed with Alzheimers. Maybe watch that and see what kind of condition a patient has to be in to get a shunt with a good outcome? Helped me understand what mayo was trying to explain to me. Good luck at your appointment!

Sat, Aug 3 12:25pm · Dieting, Mayo Diet, Keto Diet, any suggestions? in Healthy Living

I love steel cut oatmeal, not the rolled oats. I've been eating Bob's Red Mill, found it in the health food isle.

I'm heading toward being diabetic, and my lipids are increasing. We discussed taking a statin, but I can't take statins due to my myasthenia gravis! statins can make some people flare with the MG. So, I modified my diet quite drastically, which is one reason that drove me to start this conversation regarding diet.

I've been finding fruits and vegetables that are red are really helpful to reduce my autoimmune symptoms, red cabbage, red peppers, dark cherries…. blue berries, arugula, dried cranberries, strawberries. I've been eating mostly vegen this month, it's really reduced my symptoms (I think) at least I'm attributing my symptom reduction to my new diet of fruits and vegetables. I even have red cabbage cole slaw for breakfast when I make some!

Sat, Aug 3 10:53am · Dieting, Mayo Diet, Keto Diet, any suggestions? in Healthy Living

I've purchased the Mayo Clinic Diet book recently, begun thumbing through it. All the way back to page 302 the menu guide starts! I was surprised by that. Lot's of behavior modification stuff in the previous 301 pages…. I'm pleasantly surprised that breakfast includes a bagel, lunch includes a turkey sandwich, and dinner includes a small flank steak, 1/2 potato and green beans, even alittle sour cream!

so far today I've had steel cut oatmeal with strawberries and ice tea. I haven't shopped the menu in this book yet, working on that next .
my current diet modifications have been stricter than the menu guide in this book, but I credit a 10 lb weight loss for me this month! 20 more pounds to lose is my goal.

@lioness you were right, it's a nice book