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Oct 11, 2016 · Tumid Lupus in Autoimmune Diseases

I am not sure what Tumid Lupus is or how it differs from the type of Lupus I have. I was diagnosed with Discoid Lupus about 20 years ago. I am now 62. According to the Specialist I saw, this type of lupus usually affects the skin only but in about 5% of cases it can develop into Systemic Lupus and thus attack internal organs etc. I have been very lucky as I have not experienced many severe flares. I do tend to tire easily, have dry eyes and sometimes show the butterfly rash on my cheeks. I am sun sensitive and try to protect myself with sunscreen and protective clothing. I have had skin lesions but have been very lucky in that they healed leaving no scars. I have also experienced the heat that comes from within that nothing seems to help. I tried a fan and cool baths but they didn’t really help. I would be sweating yet at the same time I would have goosebumps and be shivering. The thing was I would only sweat on one side of my body and only on my trunk (no arms, legs or head sweating). A really weird sensation and hard to explain to the doctor. He put it down to hot flushes. I was given different creams for the lesions but they caused my lesions to itch and burn. I live in a small town and the Dr.’s here do not have much experience with lupus. I have found that being proactive by getting enough sleep (I take half of a 7.5 mg Zoplicone at bedtime), protecting myself in the sun, staying away from fluorescent lights when I can, eating healthy and walking, my symptoms seem to have lessened somewhat. I have started to develop other symptoms in the past couple of years such as long term memory loss, joint pain, fibromyalgia and swelling, but my doctors are putting my symptoms down to stress. I have gone through a couple of very traumatic events in the past couple of years. I had never thought about these new symptoms possibly being related to my lupus. Since reading your post I have been doing a little more research and I think I should have these symptoms investigated further. I am sorry that you are going through this as it can really be a challenge in your life. My only advice to you would be to find a compassionate doctor experienced in treating the type of lupus you are dealing with and try to maintain your overall health. I know this takes a supreme effort when you are having a flare, but I believe trying to stay healthy and maintain a positive outlook does help.

Sep 28, 2016 · Ready to throw in the towel ... never imagined I'd be this sad in Mental Health

When I read your post, I just had to respond.

I have been retired for the last eight years. I am now 62 years old. Similar to you, I didn’t mind being home all day. My husband of 43 years and I did many things together. We were best friends as well as husband and wife. Our friends were originally my husbands friends. He was a few years older than I so we chummed with his age group. Unfortunately my husband passed away in November 2014. He had been diagnosed with terminal pancreatic cancer in December 2013. Prognosis was 2 weeks to 2 months. My husband lived for 11 months. I was his only caregiver for the entire time as his friends had drifted away and he was not comfortable with strangers in the house. My best and only friend (Judy) was also fighting cancer. She was my support throughout my husband’s illness and death. I can never express my gratefulness to her for her support.

Nine months after my husband passed, my mother also passed away from cancer. A total shock as she had never been ill a day in her life and suddenly over a three day period she was diagnosed with cancer and passed away. I was a mess. I managed to get by just putting one foot in front of the other. I have 2 sons (44 & 39 yrs. old) but both live a long distance from me. They also have their own lives to live and I didn’t want to become a burden so when asked I said everything was okay.

My best friend Judy passed away this past June. Now I am by myself with no friends or family near by. I am depressed and have been seeing a psychiatrist for medications and counsellor to help me work through my feelings and emotions. Days go by when I don’t see or talk to anybody.

I have been trying to make new friends since my husband died but it is not an easy task. I have tried joining a couple of groups but have found that most of the participants do not socialise outside the group setting.

What I want to pass on to you is don’t put off making new friends or participating in things you like to do, either by yourself or with your husband. Keep your social circle alive. If your husband does pass before you, God forbid, it is a very lonely and sad place to be in. I am speaking from experience and don’t know whether I will ever get beyond this loneliness, even though I keep trying to meet new people.