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Oct 15, 2015 · Son diagnosed at age 9 with a bicuspid aortic valve and dilated root in Heart & Blood Health

I have an 11 year old son who was diagnosed at the age 9 with a bicuspid aortic valve and dilated root. He is being followed by a pediatric cardiologist at this time. I was wondering if there is a study that is open for him to be followed. This is a hereditary issue as his father and grandfather have the same. Any information would be greatly appreciated.