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Posts (7)

Apr 12, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I HAVE HAD MAC FOR TWO YEARS OR MORE

SINCE I DECIDED IT WAS NO BIG DEAL WITH ME I AM DOING VERY WELL

AS I AM 86 YEARS OLD I DECIDED AGAINST ANTIBIOTIC TREATEMENT

MY SPECIALIST THINKS THAT IS AN OK IDEA AND WILL MONITOR MY XRAY EVERY 6
MONTHS

SO THE BIG THING AS I SEE IT IS TO DECIDE THAT I AM JUST FINE EACH DAY AND
LIVE A HEALTHY AND ACTIVE LIFE AS BEFITTING MY AGE

I AM ALLREADY ON 4 RX EACH DAY FOR HEART AND OTHER CONDITIONS AND THAT IS
ENOUGH OF THAT STUFF

WORKS FOR ME

JOHN KITE BC CANADA

Mar 6, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

All good information. I have had MAC for about two years now, but so far
not a great lot of distress with it. As I have rather severe reflux
problems it is hard to tell what is cousing the most distress. But so far
nothing that i can’t live with and have quite a good life for an 86 year
old. I just got back from a 3 block walk at 5 PM. Am wintering in Arizona.

Mar 4, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I was diagnosed with MAC and nodules last Aug. I take medications for heart
and PTSD.
More medications would be a great drug load for my body.

So I just live as healthy as possible and have an exray two times a year.

So far I think my disease is in remision And as I am 86 why do the drug
programn that may not work.

When I have chest discomfort I chew on ginger and it stops the discomfort.

86 going on 87

Oct 7, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Is your MAC in the upper portion of your lungs?

John

Oct 5, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

THANKS FOR THE INPUT kATEMAN

Yes nI am trying to hook up with someone here in British Columbia Canada,
Perhaps at Kamloops BC for the non drug treatment.
So far no luck but the day is young.

John

Oct 5, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Here I am johnlk. I have just started on this site. I am an 86 yr old white male WASP. Well not P i am LDS since 1988.
Have had MAC the not so bad kind with nodules in the lower portion of lungs for past 2 @ half years. Finally diagnosed for sure this past Sep. Up till 2 years ago I have been very healthy for my age and active. Now not up to doing much and need lots of rest. I had severe phemonia 4 years ago and probably lowered my imunity since then. I was a career pilot in the RCAF in Canada for 21 years and have PTSD so cosiquently have a lot of disturbed sleep that doesnt help one to be rested.
Also had a lot of surgery in past 3 years. With atrial fibulation, had pace maker and surgery to open up caritoid artery to clean out plaqe blockage. Surgery on face for malinoma. Have elected to just be monitored and not take drugs for the MAC. To live as healthy as possible and try to build up my imunity. After all at age 86 I will probably die of some other cause than the MAC or not live until the end of a drug treatment plan. I dont need any more day to day living discomforts than I am already loaded
down with. At present half a flight of stairs is enough for me without a rest.

I would be particularly interested in hearing how it is going for other patients who are not on a drug plan for MAC but are trying to let their own body fight the MAC without drugs. I already take 4 RX for my other conditions.

Just now I dont have the stamina to do much exercise just get through the day.

Best wishes to all. John