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Posts (3)

Mar 10, 2017 · Chronic inguinal pain in Chronic Pain

Hi! I’ve been on a similar road for a long time. Mine is not nerve entrapment, though. There is no clear cause. It is primarily the hypogastric nerves that are problematic. I’ve done every possible medication. I had steroid injections (although to ilioinguinal… the wrong nerves for me) and radio frequency ablation. The RFA actually sent the pain into a tail spin and created pain where there wasn’t any previously, and then other providers confirmed what I suspected. Healthy nerves were killed. I still had the same old pain across my entire lower abdomen. By the way, mine was also caused by C-section in 2012. Most recently, I wound up having abdominoplasty (tummy tuck). The idea was to cut away the hypogastric nerves. I am still in need of pain medicine to manage, but have slowly and gradually become more functional since the RFA mess in Oct 2015. I just wanted to say hello, you aren’t alone, and you must keep pushing for answers. I am still in the care of a Neurologist (was only seeing OB/GYN pelvic pain specialist for many years until I grew tired of not getting anywhere and referred myself out after the last straw of RFA). The plastic surgeon actually refused to file an insurance claim until literally yesterday (surgery was April 20, 2016). I had to basically back him into a corner to have it done. I doubt the insurance will reimburse me for it, but it never hurts to try. I encourage you to keep fighting the good fight. I have no answers; only sympathy. Oh, have you consulted with a plastic surgeon regarding scar revision? Maybe that could release the nerve to help it heal? I do believe that procedure is likely to be covered by insurance with adequate doctors’ office notes. Best to you!

Sep 19, 2016 · physical therepy for a stiff neck that tilts to one way in Spine Health

I have had incredible results with a chiropractor who is called an “atlas chiropractor”. They do not do cracking adjustments and start with c1/c2 area (then working down the spine) after taking xrays to see where alignment or curvature is off.  It is very gentle tapping.  Then, I also had massage og the neck and shoulders.  My problem was mostly when I would turn my head, I would feel painful pulling beneath the shoulder blade.  It took about 6 months, but it finally worked for me.  It seems that before PT will be effective, everything needs to be in alignment and the muscles loose (purely anecdotal from my experience as well as of others I know).  It seems when those other 2 conditions aren’t met, PT has aggrevated the situation. Good luck! 

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Aug 27, 2015 · My chronic pain all started 4/11/06 in Chronic Pain

Hi Karri, thank you so much for all the updates you have posted. Here is my history… In June, 2012, I had a c-section after 27 hr labor. After surgery, I was having burning pain on my abdomen surrounding scar, and slightly into groin. After attempting gabapentin, I was referred to Deniz Zolnoun at UNC (luckily, I had delivered at UNC and was going there for help after I developed a hematoma and the midwives I had seen at the birthing center, then UNC OB/GYNs could no longer help). She has been amazing in helping to try everything (maybe nothing you haven’t tried already though). Anyway, I have been on Cymbalta, Gabapentin, and Propanolol for about close to 3 years). Overall, she shrunk the area of the pain to very small area near the scar. I’ve also had Lidocain patches, topical lidocain, nerve blocks, etc. I haven’t worn much with waistebands and try to avoid underwear – that actually has helped in my case. Difficult to find professional-looking long dresses. she collaborated with Dr. Dominika James in the pain clinic at UNC. I have now had 2 injections of steroid mixed with numbing med in the ilioinguinal nerve – the first gave me relief for 6 weeks! No pain for 6 weeks!!! Well, it did return, so went again for 2nd and got relief, but less relief and it returned sooner. Up next, she will try RF Ablation. I am weaning off of Cymbalta now, tried to wean off of propanolol, but pain got worse, so went back on. My priority is to get off of Cymbalta, but hopefully the others because I want to try and have another baby. So, I will certainly let you know how RF works for me and keep you posted. I would suggest looking into the doctors I listed above – Zolnoun specializes specifically in pelvic pain, if you are inclined. As luck would have it, my daughter stepped on my troublesome nerve (I think) yesterday while we were playing, and now I have an increase in pain lower towards groin than usual. I definitely seem to have a smaller overall area than you, and I sincerely hope you are able to get relief soon!

Here are some other things we’ve tried, that may or may not offer some ideas. If you’re like me, I don’t care… I’ll try anything that has a glimmer of possibility!

– Tiger Balm (good for temp relief)
– Magnesium (I think this is supposed to decrease inflammation)
– Acupuncture (definitely highlighted the lack of chi to affected area, but overall I didn’t see marked difference)
– Topical cream from compounding pharmacy – includes ketamine plus other (after a couple weeks, I am thinking it isn’t having much more impact than tiger balm)
– EPA Fish Oil
– Hypericum Oil (topical, from acupuncturist, similar affect as tiger balm)

All the best and would love to hear how you are doing.