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Posts (3)

Aug 24, 2015 · Five years ago, I had to have an emergency hysterectomy with delivery [...] in Digestive Health

HI BECKY,
WHEN IS YOUR APPOINTMENT AND WHERE DO YOU LIVE. I NEVER DO BLOGS OR SOCIAL MEDIA. IE FACEBOOK ECT…. I AM RESPONDING TO THIS E MAIL AND ASSUMING IT WILL GO ON THE MAYO WALL.
IT WOULD BE MUCH EASIER TO SPEAK ON THE PHONE, BUT I DON’T WANT TO POST?MY NUMBER?ON THE BLOG.
WHEN YOU GET THIS…..PRVATE MESSAGE ME…IF YOU WANT TO TALK.
AS YOU CAN SEE FROM MY E MAIL, I HAVE 4 CHILDREN AS WELL.
KATHY

WE COULD ALL USE A DREAM, A GENIE OR A WISH TO BACK TO A PLACE, MUCH SIMPLER THAN THIS!!

Aug 23, 2015 · I AM A 52 YEAR OLD WOMAN WHO BECAME ILL AT 24. [...] in Digestive Health

I AM A 52 YEAR OLD WOMAN WHO BECAME ILL AT 24. I ALWAYS SUFFERED FROM SEVERE CONSTIPATION, BUT IN MY EARLY 20’S I STARTED EXPERIENCING SEVERE FATIQUE, JOINT PAIN AND SEVERE GASTO ATTACKS. AFTER MANY DOCTOR VISITS I WAS DIAGNOSED WITH GENETIC BLOOD DISEASES AND CONNECTIVE TISSUE DISEASE. I HAVE HAD 13 SURGERIES AND EACH ONE RESULTED IN INFECTION AND VERY LONG RECOVERIES. I AM NOW AT A POINT THAT THE ONLY WAY TO KEEP ME ALIVE, DUE TO THE BLOCKAGES, IS TO DO A FULL COLECTOMY AND RE-ATTACH THE RECTOCILE. SINCE I HAVE CONNECTIVE TISSUE DISEASE I WAS TOLD THAT REMOVING THE COLON IS NOT AN OPTION BECAUSE THE RESECTION WILL DETACH AND I WILL BECOME SEPTIC. THEY CAN’T FIX THE RECTOCILE BECAUSE THEY SAID THAT AFTER SO MANY ABDOMINAL SURGERIES, THE SCAR TISSUE IS VERY EXTENSIVE AND IF THEY REMOVE IT, DUE TO THE CONNECTIVE TISSUE DISEASE, I WILL BECOME SEPTIC. AFTER 10 DIFFERENT EXTENSIVE CONSULTS, I WAS BASICALLY TOLD THAT MY ONLY OPTION WAS TO GO HOME, WHICH IS WHERE I AM ALL THE TIME BECAUSE I AM TOO WEAK, FATIQUED, NAUSOUS AND FILLED WITH JOINT PAIN TO GO ANYWHERE. I STILL CAN’T BELIEVE THERE IS NOT A WAY FOR A SURGEON TO HELP ME, EVEN IF THERE WAS A POSSIBILITY OF PUTTING IN AN NG TUBE . ANY THOUGHTS OF SUGGESTIONS WOULD BE GREATLY APPRECIATED!!

Aug 23, 2015 · Five years ago, I had to have an emergency hysterectomy with delivery [...] in Digestive Health

HI BECKY, YOU ARE MY VERY FIRST REPLY. I JUST REGISTERED FOR THE BLOG SIGHT AS I AM IN MY NORMAL POSITION WHICH IS STUCK IN HOME IN BED. I HAVE BEEN SICK WITH GENETIC DISEASES, CONNECTIVE TISSUE DISEASE, SEVERE FATIGUE AND JOINT PAIN SINCE THE AGE OF 24. I HAVE BEEN TO MORE DOCTORS IN THE PAST 28 YEARS THAT I FEEL I COULD BE ONE. I HAVE BEEN TOLD BY 10 COLORECTAL SURGEONS THAT DUE TO MY CONNECTIVE TISSUE DISEASE, MY MAIN CONCERN WHICH IS MY BLOCKED COLON, THE SURGEONS SAID IT CAN’T BE REMOVED. BASICALLY I WAS SENT HOME TO DETERIORATE AND WAIT UNTIL I BECOME SEPTIC AND DIE. I DO HAVE SOME THOUGHTS AND IDEAS FOR YOU, BUT EVEN AS I WRITE THIS I AM GETTING DIZZY. LET ME KNOW IF YOU WOULD LIKE TO CHAT MORE AND I WILL BE IN TOUCH!!