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May 6, 2016 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Donna,

On a side note, there are two brain tumor support groups in Omaha; one is
held monthly at Immanuel and the other one is held bi-monthly at Nebraska
Medicine. I would be happy to provide you with additional information
about thee groups. While these groups are not solely focused to just
Acoustic Neuroma Brain Tumors, they do provide a lot of helpful information
about how to deal with brain tumors in general.

*Tracy Lynne Daley*

May 6, 2016 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Donna,

Thank you for your message. I am sorry to hear about your the problems you
are experiencing.

I can understand about being dizzy. I have bad vertigo laying down and my
balance is majorly off a lot of the time.

I am not a doctor, but compared to a malignant brain tumor, Acoustic
Neuromas are a lot easier to handle. At least, you know that they cannot
spread like with malignant brain tumors. I have heard a lot of people have
good results.

In my case, I had two one-time radiation treatments which were almost two
months apart.

What exactly is simulation? Is that an MRI with simulation or something
else? I have never heard of this procedure.

Acoustic Neuromas can occur on their own or due to genetic factors. Mine
was a cause of genetic factors and rights now I am having a recurrence.
They have not determined the best course of action yet.

Who is Dr. Thompson? Is he with Nebraska Medicine; CHI Health; or
Methodist Health System?

I have done a lot of research about Acoustic Neuromas. If you were not
aware of it, there is a national organization called Acoustic Neuroma
Association that provides information specifically about Acoustic
Neuromas. In fact, next week happens to be Acoustic Neuroma Awareness Week
[May 8-14, 2016]. The Acoustic Neuroma Association can be found on the
following webpage:

https://www.anausa.org/

I would be happy to provide you with additional information about Acoustic
Neuromas. Maybe somehow we could email either other. If you do not wish
to do so, I understand.

*Tracy Lynne Daley*

Jul 23, 2015 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person’s balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.