Me too and I think you're doing it the right way!
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A number of years ago, my cat had the same trouble and $1500 later, was put on a prescription called Latchulose (sp?) My experience with this product is that it is by prescription only – even for humans as my friend also had it prescribed and we had a good laugh over that when I accused him of stealing my cat’s meds. I think you can also get Miralax from Costco through Amazon and that doesn’t require a prescription – this is the generic brand of Miralax. It comes in a triple pack and is considerable cheaper than Miralax. Do I know my laxatives or not!
Hi old karl and john – Please don’t count on the “jelly” variety of calcium to be less of a constipation-er (medical term)! I looked for a long time to find a tasty calcium jelly that would be both candy and good for me. I experienced the constipation almost immediately. My mother, on the other hand (she died at nearly 102) took the regular old whopping big calcium pills most of her life and never had a problem with it. This tells me it may be an individual thing but she usually had a cup of strong coffee in the morning and had to stop that ’cause it gave her the “trots” – so who knows? Might try several different permutations of the calcium &/or coffee…. hmmmm?
Been there … many times. I also have had some luck with using Vicks or Bengay – don’t like the smell but when really hurting, it helps. I also sleep on my sides and with the occasional help from a very comfortable recliner – can accumulate sleep. My feet are better in the morning as by later in the day, ankles (and feet) begin to swell so I try to hit the bedroom before that becomes too swollen. You’d think with all this information available, someone could come up with a “silver bullet” that works well without causing more health problems.
It’s difficult to maintain a bright outlook with this disease. My worst times are also at night but I’ve discovered that, for me, some of the discomfort can helped by keeping the feet cool (maybe even cold). I’ve had better results in putting a hot water bottle filled with COLD water between my feet when I go to bed. I don’t know why that works but it does for me. It allows me to get to sleep. There are so many causes and symptoms that are related to this disease. As far as I know, nothing has been found that really helps all the permutations and some that cause other problems. I’ve only tried gabapenten and it didn’t work well for me. I’ve tried to stay away from regular pain medication other than acetomenaphen (spelling may be wrong but you get the idea). I also have arthritis and that seems to kick up when I’m having a bad night’s sleep. I have a family member who also has PN and it has affected bladder and hands too so it evidently is a progressive process and not a good one. I sincerely hope a silver bullet is discovered soon and hopefully one that has no side effects and until then, I’m sticking with my cold hot water bottle.