I am so sorry that you have encountered the problems you discuss here in your email. Seems a shame when a person who is having to deal with health issues, has to end up emotionally drained due to misunderstandings, doctors not there, etc. Do you get copies of the doctor’s reports each time you have an appointment? I ask for a copy or I ask if they can send it via email. Sometimes I do have to wait or call back again in order to get them. Needless to say, there are mistakes on those reports too.
I do hope that Monday you will get some answers….the problem is there are so many many kinds of diseases out there that most doctors have to start from scratch and work up but they also need to cooperate if you are making an effort to be there. I am wondering why the neuro doctor just didn’t go ahead and start you on any procedures he/she may have come up with. Have you had any work done by them yet? If I understand correctly, it is the neuro you went to see, right? Okay, so they don’t have anything from the rheumo but I would have assumed he/she would start you by asking questions and getting some answers from you. I assume this neuro is new and you have not been there before?
Keep me apprise on your response from this doctor…..I am going to go back and read your history again.
Have as nice a weekend as possible considering you have not gotten any answers yet…must be so difficult to deal with.