Never have one unless you have no other options and can’t walk and if you decide to do it, find someone who can do it laparscopically. Also try to make them use artificial bone. It’s expensive but holds up much better.
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I contracted RSD/CRPS when I had to have some ribs taken out in surgery so the doctors could reach a place in the center of my torso. After about 5 years, the pain started to let up a bit, but the pain is excruciating at times. Where they put the ribs back you can’t even touch it and I have to wear very soft clothing and use lightweight soft blankets in the bed at night and can no longer sleep with my spouse. On the Stanford objective pain scale 1 – 50 its a 43. RSD is the old name. CRPS is the new name of this pain disorder.
Has anyone try determining if you have trigger points of pain to dx fibromyalgia? I know it sounds like a crap dx but with treatment it can really be helped and it seems to be hard to dx. I have it and don’t do much about it as I have other worse pain conditions, but it’s the only one my mom has and I can see that it can cause quite severe pain. It was also the first pain disorder I got dxed with and it was painful.
Have you tried Shriner’s Children’s Hospital? Seems like this would be right up their alley as they are very interested in orthopedic issues.
I shattered my L-1 in 2004. They shored it up with titanium and a new L-1. I also have chronic lower back pain that has its own titanium structure. The L-1 surgeries were successful (9 surgeries) and then the surgeon got the bright idea to run a spinal cord stimulator through it and now it hurts all the time. I have a huge list of stuff I can’t do but speedboating isn’t on the list. I was speedboating in Jamaica in December. Now my doctor isn’t even around. I have been trying to get treatment and pain evaluation since December. I tore my spinal cord too when I shattered the L-1. I can walk again after rehab and the cord not being torn all the way across. I have 4 different pain disorders plus more ( 27 dxes) and I’m just so frustrated that I call for six months and nothing. I feel like I live in some third world country. I have really good insurance. So today I called and they say my doctor is gone and they’ll ask the others. Maybe in a week or so they’ll get back to me. Heard this story before like for 6 months. So frustrated with spending all of my time treating pain.