Glad to share what I have but I can’t give you any insight into your overall situation since there are gaps. Ferritin, along with some other tests, is a standard measure of iron deficiency as reflected in the status of your iron stores. Low ferritin is not a separate type of deficiency but rather a reflection of the degree of that deficiency. Conversely it can be a useful metric when looking for iron overload or anemia of chronic disease, the most common mimic of iron deficiency.
So did your doctor call this out as a “ferritin iron deficiency” in contrast to an iron deficiency and that’s why you needed infusions rather than standard oral iron therapy?
Since ferritin is a measure of iron storage I looked at Iron storage diseases to see if there was one where the body would not store it and couldn’t find one. The covers is usually true, it stores too much.
So, the only situation that I can link to some need to go right to iron infusions is in hemodialysis as I mentioned earlier and apparently that’s not you.
Apologies in advance if I already asked but did you try adequate levels of oral iron therapy, possibly multiple forms?
At the end of the day its what works, so it this has rescued you from chronic symptoms its something worth taking seriously.
This meta analysis seems to agree, but for patients with absorption issues.
“In 22 trials (3300 participants), IV iron significantly lowered the need for red-cell transfusion compared with oral iron or no iron (relative risk, ≈0.8). Effects were larger in patients with low baseline ferritin concentrations and were enhanced by concurrent use of erythropoiesis-stimulating agents. In 24 trials (4400 participants), IV iron did not lead to excess mortality but did increase incidence of all-cause infection compared with oral iron (RR, 1.6) or no iron (RR, 1.3).”
Hope this helps