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Posts (5)

May 27, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you so much for replying, I will defnately give it a go. I don't
think anyone knows what it feels like. I hope I don't have to take the meds
after 12 months anymore.

Oct 6, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

James

I have been diagnosed with MAC the TB one and pleuricy in March 2015, I’m take my antibiotics at night to get relieve from the side effects. I am tired the whole time. Some days are better than others. I stopped taking my anti depression meds. Good luck, we have been put on this journey for a reason.
Maryke

Aug 18, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi everyone
After being diagnosed with MAC in the beginning of 2015 I have now
been diagnosed with TB and are on the meds for 2 mnths. I have been
in hospital for a week with pleurisy. The pain in my lungs are
killing me. I just feel sick the whole time. I am sick and tired of
being sick and tired!!!!!

May 28, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Jill
Thanks for the info. I am going for my CT scan in 2 weeks time, then
the doctor will tell be if I can start doing some exercises. It feels
like someone has broken my chest bone and rib cage. Luckily I don’t
cough that much after I started on these antibiotics. I have been
sick for 5 months before I got diagnosed. I also drink my meds with
orange juice. I split my meds in 2. I take 500mg in the morning and
the other 1800mg at night. I struggle to eat and try not to eat after
6 at night and nothing to heavy. Sometimes I feel fine (as fine as I
can feel) and then I am so tired my chest pain, and my ears ache my
neck ache. It feels like I want to roll in a ball and climb in a
hole. I feel blue and bruised. But I think I am starting to cope. I
am a housewife and my in-laws moved in as I was diagnosed, so it still
feels a bit weird for them to do everything. My mother in-law says I
should leave the medication and go the herbal route. I am to scared,
because I don’t want to take a chance.

May 27, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I was diagnosed with Mac the 7/52015. I am on 3 antibiotics (2700mg) per day. I want to know when will I stop feeling so tired? I struggle to eat. Abdominal pain, nausea etc. when I try to clean the house I struggle to breath.