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Posts (4)

Mar 14, 2016 · Diagnosed with AL Amyloidosis. What can I expect? in Blood Cancers & Disorders

It is normal to be anxious with treatments and uncertainty. Keep hope and fight against the disease. My life expectancy at the time of my diagnosis was only three months. Five years after I have good health. Good luck Jerrico.

Mar 13, 2016 · Diagnosed with AL Amyloidosis. What can I expect? in Blood Cancers & Disorders

I had a diagnosis in April 2011 of AL amiloidosis with one organ involved, my liver.

My main symptoms was : severe intrahepatic cholestatic jaundice, shortness of breath, my liver was 5 times the normal size. Just prior to my chemo treatments, my liver presented signs of failure. Liver biopsy and a great pathologist who suspected amyloidosis has led to my diagnostic of amyloidosis AL with severe hepatic dysfunction.

I had 8 months of Velcade + Dex followed by a SCT in February 2012.

I am in complete remission since that time and continue to be. I had my annual visit to my oncologist/haematologist in January 2016, the results of my tests are all in the normal range, including my liver.

Jun 4, 2015 · Video Q&A about Amyloidosis – What Patients Need to Know in Blood Cancers & Disorders

It was a very interesting Webinar with great information. I hope you do this in a regular basis because this help with our living with amyloidosis and to get the latest information from renown specialist. Thank you very much.

Jun 1, 2015 · Video Q&A about Amyloidosis – What Patients Need to Know in Blood Cancers & Disorders

I was diagnosed in 2011 with AL amyloidosis with only one organ affected the liver. My major symptom was jaundice. Is it possible when the disease will come back that it will stay in the liver not affecting other organs?