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Posts (3)

May 17, 2015 · Is MAYO conducting any research into treatments or a cure for RSD/CRPS? [...] in Brain & Nervous System

Is MAYO conducting any research into treatments or a cure for RSD/CRPS? If not, why?

May 17, 2015 · I was diagnosed with RSD/CRPS in the fall of 2012. Within a [...] in Brain & Nervous System

I was diagnosed with RSD/CRPS in the fall of 2012. Within a year I was wheelchair bound as it became excruciatingly painful to be weight baring at all. Then my blood pressure started flipping all over the place, in the space of an hour it can go from 90/60 to 225/115. Now it has spread to my right arm-so apparently I will be one of the cases that is going full body. My question is – Why is there no true research being conducted into this horribly painful and debilitating disease?

May 17, 2015 · RSD/CRPS in Brain & Nervous System

I was diagnosed with RED/CRPS in the fall of 2012. Within a year I was wheelchair bound as it became excruciatingly painful to be weight baring at all. Then my blood pressure started flipping all over the place, in the space of an hour it can go from 90/60 to 225/115. Now it has spread to my right arm-so apparently I will be one of the cases that is going full body. My question is this … Why is no research being done? Why are we being left to basically a situation of ‘let’s try this, no-let’s try that’. The treatment of patients suffering with RSD/CRPS is archaic.