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Posts (174)

Thu, Apr 23 3:01pm · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

@macjane I can't breath when wearing a mask. Anyone else having this difficulty or suggestions.

Fri, Apr 17 2:40pm · Percussion Vests in MAC & Bronchiectasis

@woot Thank you, I'm going to look into that. small woman,Flib

Fri, Apr 17 2:37pm · Percussion Vests in MAC & Bronchiectasis

/agj53 My neck hurts and I've had some headaches, which I rarely get. I stopped putting my arms threw the vest because it caused pain in my shoulder. I wrap it around my chest, connect the straps and, while I have reduced the pain, it has not gone away. I also wonder what its' doing to my brain. Flib

Sat, Apr 11 9:16am · MAC Treatment: When will I see side effects? in MAC & Bronchiectasis

@toni1132 I lost hearing in my left ear and got off the drug at my doctor's advice. That was ten years ago

Wed, Apr 8 9:16am · Debunking Myths: Can heat kill the coronavirus? in COVID-19

I wonder why so many people with MAC are so smart, intelligent. Thank you Sue for all of us. Flib

Wed, Mar 25 5:05pm · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

@sueinmn You can have the virus and never know it but can infect others. I think gathering is ignoring the science. Why take such a chance. Bree

Wed, Mar 25 5:01pm · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

@sueinmn It sounds risky to me as you can be carrying the virus and have no symptoms for several days or even never; But you can pass it on.

Sat, Jan 25 5:17pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Get rid of the steam room and hot tub…loaded with bacteria that causes the disease. Read up on it; you are doing yourself no good.