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Posts (147)

Sun, Jul 14 3:52pm · Disinfecting nebulizer in MAC & Bronchiectasis

I put parts in bowl with dish soap and pour in boiling water, then rinse and air dry.

Sat, Jun 1 8:31pm · fatigue and muscle weakeness in MAC & Bronchiectasis

@erawl I have had MAC and Bronc for twelve years. I was only on meds for five months and lost quite a bit of hearing so I quit. I am almost always in some state of fatigue. It is especially bad in the mornings. It is part of having MAC, with or without meds you are going to be tired. I force myself to take short walks and to work out 20 min. at a gym twice a week. Sometimes I will do walking laps in the house. There are days when all I can do is cave in but most days I fight back. Nebulizing a saline makes a big difference. If I can clear my lungs, I am not fatigued. I do it twice a day. The disease has not progressed much over the years. But, I am by nature a slim person but I've lost 26 lbs and cannot gain it back. Eating is a problem. I have very little appetite and only eat to live. Look into alternative treatments. They have helped me over the years. God bless, Flib

Mon, May 20 5:58pm · Negative sputum results without treatment in MAC & Bronchiectasis

@alleycat thanks for the NAC tip. I have a bottle sitting around with other bottles of who knows what. I'm going to open it up and start using it.Flib

Wed, Apr 10 9:22pm · Advice about airway clearance devices in MAC & Bronchiectasis

@dulwich My doctor also has me on 3.5% saline. I did try the 7% and it did irritate my lungs a great deal, as she had predicted.

Thu, Apr 4 9:17pm · Alternative treatments in MAC & Bronchiectasis

@nannette Thanks so much for this information.

Sat, Mar 16 8:19am · Meeting Members in MAC & Bronchiectasis

@flib Beautiful ladies. Nice to see sunshine and smiles.

Sun, Feb 24 4:23pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@@ windwalker. Me too, me too, I'm a pretty girl. Flib