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Posts (178)

22 hours ago · Any good results from taking Amikacin?? and what were side effects? in MAC & Bronchiectasis

My pulmonary doctor wants me to try this. Seems it can kill MAC bacteria as shone in some recent trials. Does anyone have information about nebulizing this drug? I have not been able to do the big three so it has been more than 10 years since I got MAC and just this year I am finally overwhelmed by it
Down to 88 lbs, lots of coughing and lots of fatigue. Let me know whatever you know about this drug. Greatly appreciated. Flib

Sun, Jun 28 9:32am · 7% Saline Solution in MAC & Bronchiectasis

When you say "don't tolerate 7% well" what do you mean. Is it discomfort or perhaps damage to the throat or….? Thank you, Flib

Wed, Jun 10 3:12pm · Late Shift in MAC & Bronchiectasis

I wish it were just an hour or two. I hate it because of the weakness but I stay loyal to the procedures. Are you on 7%….I just switch up to it this week and hope it will make some difference. I thought I wouldn't make it through but today was much easier…tell me it's worth.

Wed, Jun 3 9:23pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Also have hears checked. I lost quite a bit of hearing

Thu, Apr 23 3:01pm · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

@macjane I can't breath when wearing a mask. Anyone else having this difficulty or suggestions.

Fri, Apr 17 2:40pm · Percussion Vests in MAC & Bronchiectasis

@woot Thank you, I'm going to look into that. small woman,Flib

Fri, Apr 17 2:37pm · Percussion Vests in MAC & Bronchiectasis

/agj53 My neck hurts and I've had some headaches, which I rarely get. I stopped putting my arms threw the vest because it caused pain in my shoulder. I wrap it around my chest, connect the straps and, while I have reduced the pain, it has not gone away. I also wonder what its' doing to my brain. Flib

Sat, Apr 11 9:16am · MAC Treatment: When will I see side effects? in MAC & Bronchiectasis

@toni1132 I lost hearing in my left ear and got off the drug at my doctor's advice. That was ten years ago