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Posts (2)

Oct 20, 2016 · #AsktheMayoMom about Pediatric Congenital Heart Defects in Heart & Blood Health

Dr. Dearani & Dr. Mattke, thank you for this wonderful method of communication today. THANK YOU for using the words, “accountability & ownership”, as we navigate the world of CHD with our children. Many blessings.

Oct 19, 2016 · #AsktheMayoMom about Pediatric Congenital Heart Defects in Heart & Blood Health

Dr. Dearani, our son has TOF with severe pulmonary stenosis. The full repair was performed at Mayo in 2014. The pulmonary valve was not spared. Our son is now closing in on three years old and we were told at his last visit, that he would be looking at PVR before the age of 10. My husband & I are curious where Mayo Clinic is in the research phase and/or trial phases of stem cell treatment for heart valves in the pediatric population. Is the FDA closer to approving trials than they were three years ago? Secondly, what is being done at Mayo and on a national level, to collect data on our heart kids, with respect to surgical outcomes, neurodevelopmental delays, reintervention rates and successes, and so on, as these children age and join the adult chd population? Thank you for your time.