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Sun, Jan 19 10:01pm · Kommerell’s Diverticulum with aberrant right subclavian artery in Heart & Blood Health

It is very unsettling and difficult to not think about. I live in B.C. and my surgery was at St. Paul's Hospital in Vancouver, B.C. – I live on Vancouver Island. Sadly, the Mayo Clinic is not an option for me unless I win a lottery. There is a 2016 study out of Virginia that says KD's should 'be called Kommerellis Aneurysm and not Kommerellis Diverticulum because of their unpredictability and catastrophic nature' and it goes on to explain why. My surgeon called it an aneurysm but my cardiologist now feels as your does that it shouldn't be under the aneurysm umbrella, that they are unlikely to rupture or rare to rupture but considering what we have is very rare, it seems par for the course. I hope this isn't too much negative stuff and I apologize if so.

Mon, Jan 13 11:29pm · Kommerell’s Diverticulum with aberrant right subclavian artery in Heart & Blood Health

I am absolutely shocked reading your post – I have exactly the same thing. There should be a post on here from a few years ago describing my situation. I did not know there was anything wrong with me until I was into my 50's (I am 59 now). I have had one very complex surgery in which they went through my back because my aberrant left subclavian artery had eroded my spinal column and embedded in there. There is a second frontal surgery being discussed because of the Kommerellis diverticulum and a vascular ring crushing my esophagus and trachea. I have had conflicting opinions on the danger of the KD erupting. The discovery of my heart issues came when I got very sick, perhaps because you are not, you may never need surgery. I hope that is the case for you.

Aug 2, 2019 · Kommerell’s Diverticulum with aberrant right subclavian artery in Heart & Blood Health

It is all very confusing isn't it. Oddly, I was diagnosed with a bicuspid aortic valve when I was about 12. Thought I had it my whole life but when my congenital defect arose, testing eventually showed I didn't have that. I live in Courtenay BC on Vancouver Island and have to go to Vancouver for all my testing (takes about 6 hours one way – 2 hour ferry trip included in that). I would love to have the option of the Mayo Clinic but would need to win the lottery, haha. Surgery is scary but you are going to the best place and they really know what they are doing. 😊

Jul 30, 2019 · Kommerell’s Diverticulum with aberrant right subclavian artery in Heart & Blood Health

Hi, I would love to follow and hear what the Mayo Clinic suggests for you. What exactly were you diagnosed with? I have a right facing aorta with an aberrant left subclavian artery (that actually eroded and embedded itself in my spinal column) and a kommerell's diverticulum. I have had one surgery in which the surgeon went through my back (in hopes of removing left subclavian from the spine – could not do) and cut some parts of my heart to loosen the bindings around my trachea and esophagus, he rolled my aorta and tacked it to my heart in hopes of relieving the pressure on one area of the trachea. There was always the thought that I will need another surgery through my front but I haven't needed it yet. My original surgery was in 2015. I do have chronic chest pain and other symptoms but remain active and hopeful.

Feb 24, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

We do sound alike. It was really hard to get my mind wrapped around the fact I would not be the same person again (I did a lot of training and competing) but I have become more settled with it as time goes by. I am glad you found what works for you and you are able to keep strong – pilates are great!

Feb 21, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Wow, a lot of really interesting, ditressing situations out there. I have a right-facing aorta with a kommerellis diverticulitis and an abhorrent left subclavian artery which has eroded and embedded into my spinal column. The kommerellis is an aneurysms of some type and I worry constantly about it bursting. I had heart surgery in 2015, where they went in my back (in hopes of removing the subclavian artery from my spine – where not able to) but they did cut parts of my heart which where strangling my trachea and esophagus and rolled my aorta and tacked it onto my heart (to try and get it off my trachea). This was thought to be my first of 3 open hearts with the next possibly being an artificial aorta put in. It has been a confusing nightmare. I am 57 year old female who was etremely active and am able to excerise again now but not without fear (and limited breathing ability and pain). I have had this since birth but it didn't 'blow-up' or make itself know until 2014. Besides worrying about the heart issues, this artery growing into my spinal column freaks me out as well. Thanks for listening. ☺

Feb 7, 2017 · Kommerell’s Diverticulum with aberrant right subclavian artery in Heart & Blood Health

Thank you, Colleen for the site. The pain when talking started at the same time my heart condition made itself apparent – two and a half years ago. I was 54 when I fell very ill and learned about my congenital heart condition.