About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (13)

Fri, Aug 2 8:33pm · Kommerell’s Diverticulum with aberrant right subclavian artery in Heart & Blood Health

It is all very confusing isn't it. Oddly, I was diagnosed with a bicuspid aortic valve when I was about 12. Thought I had it my whole life but when my congenital defect arose, testing eventually showed I didn't have that. I live in Courtenay BC on Vancouver Island and have to go to Vancouver for all my testing (takes about 6 hours one way – 2 hour ferry trip included in that). I would love to have the option of the Mayo Clinic but would need to win the lottery, haha. Surgery is scary but you are going to the best place and they really know what they are doing. 😊

Tue, Jul 30 7:55pm · Kommerell’s Diverticulum with aberrant right subclavian artery in Heart & Blood Health

Hi, I would love to follow and hear what the Mayo Clinic suggests for you. What exactly were you diagnosed with? I have a right facing aorta with an aberrant left subclavian artery (that actually eroded and embedded itself in my spinal column) and a kommerell's diverticulum. I have had one surgery in which the surgeon went through my back (in hopes of removing left subclavian from the spine – could not do) and cut some parts of my heart to loosen the bindings around my trachea and esophagus, he rolled my aorta and tacked it to my heart in hopes of relieving the pressure on one area of the trachea. There was always the thought that I will need another surgery through my front but I haven't needed it yet. My original surgery was in 2015. I do have chronic chest pain and other symptoms but remain active and hopeful.

Feb 24, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

We do sound alike. It was really hard to get my mind wrapped around the fact I would not be the same person again (I did a lot of training and competing) but I have become more settled with it as time goes by. I am glad you found what works for you and you are able to keep strong – pilates are great!

Feb 21, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Wow, a lot of really interesting, ditressing situations out there. I have a right-facing aorta with a kommerellis diverticulitis and an abhorrent left subclavian artery which has eroded and embedded into my spinal column. The kommerellis is an aneurysms of some type and I worry constantly about it bursting. I had heart surgery in 2015, where they went in my back (in hopes of removing the subclavian artery from my spine – where not able to) but they did cut parts of my heart which where strangling my trachea and esophagus and rolled my aorta and tacked it onto my heart (to try and get it off my trachea). This was thought to be my first of 3 open hearts with the next possibly being an artificial aorta put in. It has been a confusing nightmare. I am 57 year old female who was etremely active and am able to excerise again now but not without fear (and limited breathing ability and pain). I have had this since birth but it didn't 'blow-up' or make itself know until 2014. Besides worrying about the heart issues, this artery growing into my spinal column freaks me out as well. Thanks for listening. ☺

Feb 7, 2017 · Kommerell’s Diverticulum with aberrant right subclavian artery in Heart & Blood Health

Thank you, Colleen for the site. The pain when talking started at the same time my heart condition made itself apparent – two and a half years ago. I was 54 when I fell very ill and learned about my congenital heart condition.

Feb 7, 2017 · Kommerell’s Diverticulum with aberrant right subclavian artery in Heart & Blood Health

I have a right facing aorta with an abhorrent left subclavian artery and a kommerellis diverticulum. I have had one surgery and am looking at more. My question/query is this: does anyone with a heart condition get heart pain just from talking? The more I talk (just with friends, on the phone etc) and the louder I talk increases my pain. My surgeon is suggesting now that I might have an aorta which is attached to my breastbone and I might now need an aortapexy – symptoms being the talking issue. Anyone familiar with this? Thank you. ☺

Jun 26, 2016 · Possible cervical osteophytes, paralyzed vocal cord in Ear, Nose & Throat (ENT)

Hi Teresa, thank you for the info. 🙂 The temporary filler is okay, I have some difficulties with my breath intake but that in part could be due to my heart condition. My voice is quite good with the filler just gets a bit rough when I talk too much. The temporary filler will last 6 months to a year and I think it might be wearing out a bit now as I am slightly more breathless (it has been 4 months). I think the permanent plastic piece will be a good thing though it worries me a bit but it is good to hear what you have to say. My surgeon is Dr. Morzaria and it will likely be at the Jim Patterson Surgery Center in Surrey, BC. Do you ever worry about the plastic piece shifting?