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Posts (11)

Feb 24, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

We do sound alike. It was really hard to get my mind wrapped around the fact I would not be the same person again (I did a lot of training and competing) but I have become more settled with it as time goes by. I am glad you found what works for you and you are able to keep strong – pilates are great!

Feb 21, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Wow, a lot of really interesting, ditressing situations out there. I have a right-facing aorta with a kommerellis diverticulitis and an abhorrent left subclavian artery which has eroded and embedded into my spinal column. The kommerellis is an aneurysms of some type and I worry constantly about it bursting. I had heart surgery in 2015, where they went in my back (in hopes of removing the subclavian artery from my spine – where not able to) but they did cut parts of my heart which where strangling my trachea and esophagus and rolled my aorta and tacked it onto my heart (to try and get it off my trachea). This was thought to be my first of 3 open hearts with the next possibly being an artificial aorta put in. It has been a confusing nightmare. I am 57 year old female who was etremely active and am able to excerise again now but not without fear (and limited breathing ability and pain). I have had this since birth but it didn't 'blow-up' or make itself know until 2014. Besides worrying about the heart issues, this artery growing into my spinal column freaks me out as well. Thanks for listening. ☺

Feb 7, 2017 · Adult congenital heart disorder - right facing aorta in Heart & Blood Health

Thank you, Colleen for the site. The pain when talking started at the same time my heart condition made itself apparent – two and a half years ago. I was 54 when I fell very ill and learned about my congenital heart condition.

Feb 7, 2017 · Adult congenital heart disorder - right facing aorta in Heart & Blood Health

I have a right facing aorta with an abhorrent left subclavian artery and a kommerellis diverticulum. I have had one surgery and am looking at more. My question/query is this: does anyone with a heart condition get heart pain just from talking? The more I talk (just with friends, on the phone etc) and the louder I talk increases my pain. My surgeon is suggesting now that I might have an aorta which is attached to my breastbone and I might now need an aortapexy – symptoms being the talking issue. Anyone familiar with this? Thank you. ☺

Jun 26, 2016 · Possible cervical osteophytes, paralyzed vocal cord in Ear, Nose & Throat (ENT)

Hi Teresa, thank you for the info. 🙂 The temporary filler is okay, I have some difficulties with my breath intake but that in part could be due to my heart condition. My voice is quite good with the filler just gets a bit rough when I talk too much. The temporary filler will last 6 months to a year and I think it might be wearing out a bit now as I am slightly more breathless (it has been 4 months). I think the permanent plastic piece will be a good thing though it worries me a bit but it is good to hear what you have to say. My surgeon is Dr. Morzaria and it will likely be at the Jim Patterson Surgery Center in Surrey, BC. Do you ever worry about the plastic piece shifting?

May 31, 2016 · Possible cervical osteophytes, paralyzed vocal cord in Ear, Nose & Throat (ENT)

I do not know anything about your cervical situation but I do have a paralyzed left vocal cord; damaged during my heart surgery last August. Right now I have a temporary block/filler in my throat but will be getting a permanent plastic piece put in when this temporary stuff wears away (about 6 to 10 months). I am very interested to know how invasive is this permanent surgery, how long for healing and how much does it effect your breathing and voice? Thank you for any info you can share.

May 29, 2016 · Right-facing aorta with Kommerellis diverticulum in Heart & Blood Health

Hi! Thank you for responding and sharing the contacts. Do I need to somehow alert them or will they see my posts? My surgery occurred in August and the surgeon went in through my back – my scare is quite large and it looks like I have had a lung removed. The surgeon went in through the back because my left subclavian artery has eroded and embedded itself in my spine. He was unable to remove it because it has actually attached itself to my spinal cord. This might be a horrendous surgery in the future if my back continues to decline. He also cut some bands on my heart which were strangling my trachea and esophagus and lastly he rolled my aorta and tacked it to my heart. I think I am healing quite well but there is still pressure, clamping and pain in my chest daily as my aorta is still compressing my trachea at a very high, front part of my chest. I do not know when tge second surgery for this will be – I am hoping things will improve and I might not need it. I am curious to hear from people who have anything similar and/or have had a plastic piece put in their throat because their vocal chord was paralysed during the surgery ( vegus nerve nipped). I have a temporary filler put in my throat and I do have breath intake problems (though this is likely due in part to my aorta as well). Does the plastic piece feel better or worse? Does anyone have a right- facing aorta that is compressing their trachea and ard waiting for surgery or have had surgery? Thank you for any thoughts on any of this.