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Feb 20, 2015 · I have RSDS/CRPS (reflex sympathetic dystrophy syndrome/chronic regional pain syndrome) in Brain & Nervous System

Thank you for your sweet response! I have only medicade and they do not
cover nerve blocks. Hoping to try a stem cell treatment trial out to
regenerate the tissue and get rid of some of the scar tissue that’s causing
me so much pain. I seen a woman get the use of her wrist back from doing
it. Have you heard much about it?
Erma

Jan 19, 2015 · Evasive Diagnosis, Deteriorating Health and College (Lysosomal Storage) in Just Want to Talk

Health or Career? That’s a hard one. One thing to keep in mind-you cannot of a career without your health. Health won’t always wait, but you can always take a leave of absence from school. Stop thinking about what everyone else wants. Including the pressures society puts on you and go meditate for an hour or two or however long it takes for you to settle down your body and mind enough to hear your voice inside. Not all decisions can be best made analytically, and the really important ones won’t make sense right now. Find the answer and make the decision. You are the one that has to live with the decisions you make. Another thing-in my personal experience the more research I did pertaining to the symptoms I was experiencing when I didn’t have an actual “name” or “diagnoses” to label my symptoms, the more stressed out and upset I felt. It’s once you calm down and realize it doesn’t matter what they call it, its there and I’ve got to find the best days to deal with it, that the answers will flow to you. You will find peace. Distractions can seem helpful, but sometimes you’re just swapping one stress for another avoiding the problem that you really need to be focusing on. If you are doing well in school with what you’re dealing with, then I wouldn’t worry for a minute about catching up. It sounds like you have a loving family and they will do everything in their power to help you. That my friend, is hard to come by. You know the answer. Just let go. God Bless

Jan 19, 2015 · I have RSDS/CRPS (reflex sympathetic dystrophy syndrome/chronic regional pain syndrome) in Brain & Nervous System

Hello everyone! I’m Erma, I live in Utah and I have RSDS/CRPS (reflex sympathetic dystrophy syndrome/chronic regional pain syndrome for those of you that don’t recognize the acronym). I acquired the RSD after my right arm was nearly amputated when I flipped through an old, patio, plate glass door. The glass severed my artery, nerve trunk (Brachial Plexus) and tendon. I’m fortunate to be alive, however I am in constant pain!! I am looking for anything that will help, even amputation (last resort). It’s been nearly eleven years, I have my third child on the way and I can’t handle missing out on time with them. Anyone have any advise or heard of anything that may benefit me? Thanks