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Aug 8, 2015 · Burning Mouth Syndrome. I have it very severe. in Skin Health

Hi Karri,

Thanks for your comments. You are the first to respond and your response gave me access to the thread with all the other comments. Really quite discouraging aren’t they

Unfortunately, I don’t have any good recommendations for you. My quest for relief from 24/7 pain which manifests with the burning around the exterior of the mouth, pressure, numbness, tingling and just overall discomfort includes:

Dentists, oral surgeons, biological/holistic dentist, MDs, neurologist, naturopathic doctor, acupuncture. I’ve taken pain meds, antibiotics, prescription dose ibuprofen. The only definitive help has been acupuncture. My acupuncturist told me at the onset that nerve regeneration is very difficult and I needed to be prepared to commit to the long haul: 12-18 months to achieve up to 50% improvement at best. I get treated 2x/week and am in my 11th month. I have had a reducing of the symptoms but probably not more than 20%.

As you know, the pain takes over our lives. I am a very active person but there are days when I can’t get out of bed overcome by weakness and fatigue. It really is lousy.

I hope this might help in some way. My best to you and, again, thanks for reaching out.

Susan

Feb 2, 2015 · Burning Mouth Syndrome. I have it very severe. in Skin Health

Can you share names of the dentists/location you know specially trained in facial pain? I’ve suffered 24/7 for over a year and no one seems to be able to help me. Thanks for your help. Sorry about your circumstance.