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Posts (2)

Sep 25, 2014 · Chiari Malformation type 1 in Brain & Nervous System

I have been diagnosed with chiari malformation and I have been having bad headaches for over a year now 24/7. I also have blurred vision that the doctors are not sure why.i am on my 3rd set of botox treatment and it hasnt done nothing. I am nit sure if it is the malformation causing my problems and the doctor is no help with that. Anyone having or has had the same problems? Needing a little advise about this. I cant keep having migraines every day.

Aug 11, 2015 · Chiari Malformation type 1 in Brain & Nervous System

Hi christine. The Botox did not work for me at all but everyone is different. I have had these headaches for over 2 years and i am still the same if not worse. I even went to a head institute in Michigan and all they wantes to do is keep me for 10 days to do iv medication. I dont live anywhere close to them so i wouldnt stay. I figure my doctor can do that here by me. I have been to over 10 doctors and they dont know what to do. I see mine tomorrow so we shall see what he has to say again. I had a spinal fluid leak sealed but now i cant feel some of my hand and fingers from the surgery and it didnt help my headaches. When you go in to see your doctor just make sure you ask him if this will help. Be open minded to what they want to try first. Dont do the physical therapy because igs just a waste of money and time if they want to try that before. Good luck and let me know what they want to do maybe it will help me too.