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6 days ago · Prolia treatment for osteoporosis in Bones, Joints & Muscles

If you want to read reactions to Reclast from lots of people, go to Drugs.com. It's not just me.

6 days ago · Prolia treatment for osteoporosis in Bones, Joints & Muscles

Thanks for your suggestion.

6 days ago · Prolia treatment for osteoporosis in Bones, Joints & Muscles

After the Prolia disaster I took the RECLAST infusion, only 1/2 dose since it is in your system for 6 months and longer. I have digestive issues (lactose intolerance, fructose malabsorption, etc.) and the doctor said it wouldn't affect my stomach like the bisphosphonates pills. Wrong! I had HORRIBLE side effects, not just gastrointestinal issues but dozens of others. This is the worst medicine I've ever had and I think it should be removed from the market. Either that or they should learn how to tell if someone shouldn't take it ahead of time, since there is no antidote. You can find a list of the side effects on the Mayo Clinic site – look under drugs, and type in zoledronic acid. The list is 3 or more pages long! Besides trashing my G.I. tract (I had had it all under control before this), it screwed up a bunch of other body systems. I couldn't even plug a cord into an outlet without getting out of breath. The first time I couldn't get my breath back for 2 days so finally went to the ER. They found nothing so I know it was that (plus it happened multiple times after that). I bought a can of aviators oxygen from the Harriet Carter catalog and have used that multiple times to get my breath back. My bone density only increased 3% for all I had to go through. I got the infusion in April 2019 and am still not back to normal. Have you tried Forteo? That is a drug you inject into yourself daily. That has the advantage of bypassing the GI tract plus you can quit anytime if you need to. Anyway, never again for the 6 month drugs. My next plan is to try an oral bisphosphonate you take weekly or monthly. Good luck with whatever decision you make!

6 days ago · Prolia treatment for osteoporosis in Bones, Joints & Muscles

I had one injection of Prolia and the results were TERRIBLE. Prolia hijacks your immune system to build bone; they don't tell you that ahead of time. So, I had an ear infection for 3 months. The ENT doctor told me about the hijacking and said to NEVER get this shot again. If you are susceptible to infections, like getting colds easily or having every little cut become infected, DON'T get it. It's in your system for 6 months or more, and there is no antidote. You just have to wait it out and suffer the whole time.

Aug 25, 2019 · Fructose Malabsorption in Digestive Health

I have found that I can eat potatoes without the skin, and potato chips. The skins of potatoes have fructans in them (chains of fructose). Also, for some reason quick oatmeal is much better tolerated than regular, so that might be worth a try. If you can drink wine, you can probably eat potatoes without the skin and quick oats.

Aug 25, 2019 · Fructose Malabsorption in Digestive Health

Fructose is in all fruit, the majority of vegetables, lots of spices and herbs, wheat, barley, etc. Wheat contains the chains of fructose called fructans and these are also a problem. As you say, the best way to control the symptoms is to avoid the foods that cause them.

Aug 24, 2019 · Fructose Malabsorption in Digestive Health

The doctor I initially saw is no longer at Mayo in Rochester. The one I've seen since then is Dr. Grover, and he is very good.
Regarding dieticians, I've seen many including at Mayo and none were any help because they said I should be able to eat things I couldn't. One locally didn't charge me because she said I know more than she does about fructose malabsorption. FM is a new area. There are lots of tips is this fm discussion list, like diet and recipes on I believe page 5, and identifying sugars in drugs and supplements. Some people with fm can tolerate a lot more sugar than others; I fall in the category of not being able to digest any including artificial sweeteners. I put up the diet and recipes, so that would be a good place to start until you know your degree of limitations Regarding FODMAP diet, that is a big no-no for me; can't even eat at the level they start you at let alone "reintroduce" any other foods on their list.. Regarding SIBO, once you quit eating so many foods with sugars you can't digest, the SIBO bacteria won't have anything to eat fermenting in your intestines. Also, once you no longer have the constipation and bloating the SIBO should improve. If you read through this entire fm discussion from page one you will find a lot of your questions are answered. Good Luck. Lelia

Aug 23, 2019 · Fructose Malabsorption in Digestive Health

I've never heard of sucrose intolerance. Will have to to some research. Since sucrose is a combination of fructose and glucose, have you been tested for fructose malabsorption? I have fm and cannot tolerate sucrose or glucose.