Read the uncontrollable burping and belching discussion in Digestive Health.
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@gut health, @jackiem95, @pjss48, @redhead63, @sarcomasurvivor, @gracheig. I called Mayo and they sent me the 20 page FODMAP Eating Plan and the Fructose Malabsorption Eating Plan since I am a patient. It quickly became apparent that neither would be that helpful for me. I couldn't eat a large part of the stuff in the FODMAP elimination phase so there would be no point in reintroducing the suggested foods. Also can't eat a lot on the fm plan. So, I saw a nutritionist locally yesterday about whether what I am eating so far is good in terms of nutrition, etc., and she said it was. That is nice to know. Am still trying to introduce some new foods, though, and it is helpful to know how long to wait between experiments, which the Mayo plans tell you. The FM eating plan had a couple sentences near the end that said something very true: "Changing what you eat and drink may not be easy at first. Think of these changes as a new lifestyle, rather than just diet changes. Make these changes part of your daily routine for the best chance of feeling better." That is the point I had come to because there had been no other choice. I had gotten so I had pretty much forgotten about the diet changes and restrictions until I started this discussion on Mayo Clinic Connect. Then it all came back big time. But, I wanted to share what I had learned to make it easier for others. If nothing else, know that it is possible to get to the new lifestyle phase! It may not seem like it, especially at first, and it will take some time. Don't give up. And thank you all for your input.
I was a big fruit eater too; now I don't eat any. You get so you don't even want it because you know the symptoms it'll cause. You try to compensate by making what you do eat taste really good. Did you see the long part above (about page 3?) about recipes and diet? That might help.
@jackiem95, @redhead63. Another thing. Since g.i. problems are so complex and not well understood, some doctors think the patient's problem is mainly mental. When you go up to Mayo for g.i. issues, they have you evaluated by a psychiatrist to check for mental issues. I passed the test, and my problems are physical, not mental. After I came back from Mayo and saw a physician's assistant, she said I just wanted attention and didn't really have much of a problem. I was quite annoyed. A big part of medical personnel thinking the problems are mental is that they haven't had the g.i. problems we do and don't know how horrible they can be. They don't realize how g.i. problems can hijack your life!
The g.i. tract is a very complicated system and I think a big part of the problem is there is just a lot the doctors don't know yet. For example right now one of the big areas of research is the gut microbiome. It is not like a broken bone or something definitive. On the other hand, I also had the experience of a doctor who just wanted to do upper endoscopies and colonoscopies over and over, etc., and didn't say IBS or anything or didn't do any breath tests or anything. I had to go up to Mayo to get the fm diagnosis.
Maybe aging is part of it – our bodies slow down. The intolerances are caused by damage to the lining of the intestines; that is my understanding. Regarding digestive enzymes decreasing, that may be a part of aging. Have you asked your doctor for a prescription to Creon to help you digest the fats better? I take it and need it even though pancreas tests normal. Worth a try.
If you have fructose malabsorption, PPI's can cause acid reflux. At least Prilosec can because it has sugar(s) in it. You can look up any drug in Daily Med to see a copy of the package insert including side effects and so-called "inactive" ingredients. I made a posting in the Fructose Malabsorption discussion group about going to a list of different names for sugars and then looking up drugs in Daily Med.