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Posts (6)

Jan 12, 2017 · Ketogenic diet for children in Epilepsy & Seizures

We have several recipes and ideas. Here is a website that can also help with diet: http://www.charliefoundation.org

One of my daughter’s favorite recipes is french toast (yes, with syrup). We purchase: Sami’s cinnamon raisin bread (net carb 2 in one piece) and we use Walden Farms pancake syrup (zero carb). Recipe: 1-Mix 6 eggs with about a tablespoon of sugar free milk substitute (we use almond milk) and 1 tsp cinnamon and 1 tsp stevia (we use Sweet Leaf). 2-Dip Sami’s bread in mixture to coat and fry. We use pam to coat pan, or you can use smart balance (a healthier spread). My daughter drenches the bread in Walden Farms syrup. It is a zero food and tastes like the real thing.

Sami’s bread can be purchased online or at Woodman’s grocery stores: samisbakery.com
Walden Farms can be purchased at several grocery stores as well as at: http://www.waldenfarms.com/

*Our Christina has been on the ketogenic diet (started when she was a baby on formula) and has also been on a version of the original diet called Low Glycemic Diet Index Treatment (also lovingly known as a version of the South Beach Diet). It keeps her seizure-free mostly, she is also on a low dose of an anti-seizure med. She is now 19. We have many more recipes and will share more when I have time. 🙂

Here is another book with recipes that might help: https://www.amazon.com/Fighting-Back-Fat-Erin-Whitmer/dp/1936303450

Jan 11, 2017 · Connection between depression, epilepsy and nutrition in Epilepsy & Seizures

We were gone over the holidays, sorry for the delayed response: Yes and yes. There is a connection between seizures and blood sugar. Has your son been seen by an epileptologist since this happened?

Dec 8, 2016 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

Hello! I am the mom of a beautiful 19 year old who has epilepsy. Christina’s first seizure when she was just seven months old. We quickly learned medical care for seizures is not the same and traveled to Mayo. She has been a patient at Mayo ever since. In fact, we just got back home after being in Rochester. Christina has been through a lot since the first seizure including brain surgeries. We have found that advocacy and hope can change things for the better. Our favorite treatment (if there is one) for seizures is dietary intervention. Christina has been on the original keto diet as well as another form called the low glycemic index diet treatment. She is also on a low dose of an anti seizure med.

Christina will be attending college soon and inspires us everyday.

Nov 16, 2016 · #AsktheMayoMom about Pediatric Epilepsy in Epilepsy & Seizures

Our daughter graduated this year and we understand how difficult school can be if you have epilepsy. If the struggle in school is with academics, does your son have an IEP in place to help? There is also technology that might help, our daughter recently began using a smart pen for upcoming college classes. The pen records and helps with note taking. As far as friends, have you thought about getting him involved in an epilepsy group for teens? Sometimes meeting others going through the same helps. In regard to meds, has your son tried diet? Our daughter is on a version of the keto diet called the Low Glycemic Index Diet Treatment. It’s easy for her to follow. Your son’s doctor will need to prescribe the diet and a dietitian would guide you through it. Trust me, if we can do it, anyone can.

Hope this helps!

Nov 14, 2016 · #AsktheMayoMom about Pediatric Epilepsy in Epilepsy & Seizures

Early in the seizure journey with our daughter, we struggled to find answers, and just like you, in finding the right help. Here is what I would suggest: First, an epileptologist specializes in seizures. I would schedule a second opinion with one. We know that Dr. Elaine Wirrell at Mayo is one of the best and I would highly recommend her. If you do seek a second opinion, I would write down your questions/concerns and I would include the concern of seizures being life-long if not controlled now. I’m not sure that is accurate, but know there are several treatment options including dietary changes that can help with seizures. I hope this helps.

Sep 25, 2014 · Webinar: Pediatric Epilepsy Treatment Options in Epilepsy & Seizures

Wonderful information! Thank you Dr. Wirrel and Dr. Wetgen for doing this.