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Posts (5)

Aug 20, 2014 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Im very sorry to hear that. I pray your child gets better.

Aug 20, 2014 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

That would be so great!! I really appreciate it! Please let me know and thank you!!!

Jul 7, 2014 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Thank you. I did reply above. Its very difficult, I am also
trying to figure out if there is anyone out there who knows how to treat this!!!!! Do you take steriods? This is really the only place right now I feel I can go where someone can relate to this. I hope you are feeling better. I will be sharing any information I can find out about this. Thank you for your support!!!

Jul 7, 2014 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

thank you very much! the gastroenterologists are doing a full workup, I have been dianosed with this disease and it is so iso rare, they have never even treated anyone with it, they are trying to rule out everyting else. So far, everything from Autoimmune, bacterial, and carcinoids, ect have been ruled out. I am having an MRI this week of my small intestine. My big concern is their lack of knowledge and trying to blame my symptoms on something other just because this is a rare disease. The catscan clearly showed and diagnosed this disease. However, guess I will know more after the mri. I continue to have bouts of diareah, pain in my left groin and abdominal area, nausea, fatique, flushed, bloating. I have been on the steroids for about 2 weeks now. I think they are helping a little. My gastro said since there was no big improvement in a week, that it prob wasnt this disease. Studies show that it could take months for the inflammation to decrease, not a week. I guess my next question is, where do I go for treatment? I live in Pennsylvania, if I have to travel I will.

Jun 27, 2014 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I was also just diagnosed with Mensenteric Panniculitis. I am 38, female with a history of abdominal pain and issues. Mine was also found accidently on a catscan with Iv Contrast. My doctor was also looking for an Inguinal Hernia that was found during a lapro procedure 4 years ago. I am very fatigued, wake up with hot red face, blood in stool, nausea, most of all, abdominal pain. My doctor started me on 40 mg of steroids and I am to see a GI specialist in a few days. Nothing ever showed in my bloodwork prior to the catscan. As this is such a rare condition, I am very concerned about underlying diseases. How do you even know what stage your in? What other conditions will they check for? Is this an auto immune disease?