About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (2)

Jul 1, 2014 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I don\’t know much about this disease, I tried to do my research but their isn\’t much written about it. At least they gave it a name and I have a direction to go on. I cant tell you how frustrating it was to go to doctors and have them tell me they could find nothing. My first symptoms appeared when I was 21 years old and I dealt with it almost on a daily basis. I drank enough Mylanta to fill a tractor trailer truck, it was the only temporarily relief I could find. now Im 58 and my life has had many limitations. Physical stress on my abdomen causes different levels of pain, nausea and periods of confusion. Im 6 ft tall weigh 200 pounds and work construction, I have to struggle to get through a typical day. Im learning to forecast flare ups before they start. I wish there was a magic pill I could take to feel better. I stopped talking about it years ago because no one ever believed me, I just went on with my life. When I was hospitalized 4 years ago they
finally diagnosed me, It peaked my interested to find out all I could about my infliction, best luck to you

Jun 5, 2014 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

My husband was diagnosed with mesenteric Panniculitis in 2010 after many decades of visits to GI doctors and hospitals. He had a small bowel obstruction that showed severe inflammation of his mesestery layer. It was first treated with prednisone and liquid diet. The mesentery layer was greatly reduced with 6 months of steady treatment. But since then he has had two more episodes of small bowel obstructions. We are unaware of what triggers such events but we do know that hard vigorous labor aggravates the condition, causung pain, discomfort, insomnia, vision problems, acid indigestion ( now treated with omeprazole. )
Early diagnosis could find nothing and patient was told to seek help from psychiatrist and not a gastric doctor. Decades later MRI results showed increased inflammation in mesentery and diagnosis is mesentery panniculitis. With very little medical information of this very rare condition we are at a loss to finding doctors to treat this disease. Is there a doctor somewhere in New York who can help us.