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Posts (39)

1 day ago · Livedoid vasculopathy in Skin Health

Hi Sheila and all, Are you taking any blood thinner? Xarelto or other blood thinners are the best way to treat the ulcer because it will allow for more oxygenated blood to get to the wounds. You probably need somebody in wound care to talk with, and maybe get more pain control. Zenk

Wed, May 1 8:45pm · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

Lisa, I seems that he should have at least done blood work to check for inflammatory markers . Perhaps your primary would do the tests . Tell your primary about the visit, or go back to the Rheumatologist and tell him your concerns. Unfortunately, it takes so long to get attention. Zenk

Tue, Apr 23 9:35pm · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

Hi Anna, I did not know that ones immunity is weakened simply by having RA . I thought that immunity was lowered by taking immune suppressive drugs for the disease. Would love to get that straight . I have Sjogrens and other UDCT diseases. Zenk

Sun, Mar 24 5:55pm · Sjogrens in Autoimmune Diseases

The literature for CIDP is at the website for GBS/CIDP foundation.org . I had GBS when I was a child and CIDP suspected as an adult. I took ivig several years ago and it helped some. Zenk

Sat, Mar 23 4:30pm · Sjogrens in Autoimmune Diseases

Hi Geneseos, I have Sjogrens too. I have neuropathy in my feet and lower leg. I am going to a Neurologist in April . How did you get your diagnosis of "Small Fiber Neuropathy" . What are your symptoms? Were there any conclusive test for the diagnosis.
I have been taking Gabapentin at night and pain killers in the day. Do you take anything other than IVIG ?
Wish the IG would help you. Have you looked at any of the CIDP literature? Thanks so much, Zenk

Sat, Mar 23 4:22pm · Sjogrens in Autoimmune Diseases

Hi Geneseos

Sat, Mar 16 4:32pm · Prednisone in Digestive Health

Regarding Prednisone , I have had to take prednisone in some dosage for the last 40 yrs. I have UCTD and asthma.chronically. On a lighter note, A great GP that took care of me over many years, who is now retired said to me at many of my appointments with him " We will write on your tombstone: She has great bones, due to the fact that she never wanted to take prednisone". A necessary evil for me. Best to all, Zenk

Mon, Mar 11 6:42pm · Prednisone in Digestive Health

Thanks Rosemary, I had the very same experience tapering in the low doses of Pred. Thanks so much, Zenk