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Apr 10, 2017 · prostate cancer treatment choices in Prostate Cancer

Dear @donnelson,

This is @BuckyFestoon. I have a few questions for you.
1. Have you had your prostate removed? Prior to or following the radiation?
2. Are you now or have you ever been treated at Mayo Clinic Rochester?
3. Have you ever heard of the C-11 Choline PET Scan? Currently only offered at the Mayo Clinic in Rochester.
4. What is your age?

A bit of background on me. I am 4 years cancer free and doing GREAT, following: a PSA of over 25,000 in 2011!!! Late Stage IV prostate cancer, almost complete kidney and liver failure, Lupron therapy, bicalutamide therapy, Taxotere chemotherapy, 2 major surgeries including: a prostatectomy, an orchiectomy and removal of about a dozen cancerous lymph nodes (ranging in size from a golf ball to a nerf football). In short I’ve seen and done it all when it comes to the diagnosis and treatment of prostate cancer.

I can report my thoughts and reactions to any or all of these therapies but before I do it would be helpful to know the answers to the above questions.

All my best,

Bucky Festoon.

Jul 18, 2016 · Prostate cancer treated with Leuprolide in Prostate Cancer

In August of 2011 I had a PSA of over 25,000 (you read that right), I was jaundiced and in renal failure. I went to Mayo Rochester and am alive today because of their expertise. Specifically Dr. Kwon. As far as i know the Mayo Clinic Rochester is the only place in the U.S. where you can get the C-11 Choline PET scan (Google it) which is to my understanding the best diagnostic tool yet developed for the early detection and staging of prostate cancer. BTW I ‘ve done it all. Leuprolide for 2+ years, Taxotere chemo, double nephrostomy for 8 months, 2 surgeries and monthly visits to Mayo for 2-1/2 years (fortunately I live just over an hour away). My PSA has been undetectable and my C-11 Choline PET scans clear for 3+ years now. IMHO there isn’t anywhere else to go. All other Dr’s I saw prior to going to Mayo evaluated my condition and determined all I needed was palliative care until the cancer killed me. Dr. Kwon always took a curative approach with a curative attitude and that is why I am here today.

Apr 8, 2016 · Prostate Cancer in Prostate Cancer

Marky –

Three questions:
1. What hormone treatment(s) are you on? Lupron, Firmagon, Casodex (bicalutamide)?
2. When did you start on them?
3. Have they determined whether it is contained in the prostate or has spread?

One comment: Most Dr’s aren’t in the business of giving you hope!!! They have seen a lot and though they mean well are going to be realists based on what they know (or think they know). You are going to have to find your somewhere else and get enough of it to get you past any negativity you get bombarded with.

Again my tips for the best chance for a positive outcome are:
1. Keep up a POSITIVE Attitude. For example focus on positive stuff, don’t read a lot about prostate cancer and the side effects from the drugs. Don’t worry about stuff you have no control over, just control what you can a day at a time.
2. Surround yourself with supportive, positive praying people
3. Plan your future (what are you going to do when its over). The plan for your future will refocus your thinking beyond your current situation and turn it to positive. For example if you like to travel plan the trip of a lifetime for sometime in the future.
4. Get the best doctoring you can
5. Develop a close personal relationship with Jesus.

All my best and keep in touch.

Apr 7, 2016 · Prostate Cancer in Prostate Cancer

See my post. Paul Dickie @BuckyFestoon

Apr 7, 2016 · Prostate Cancer in Prostate Cancer

See the post I wrote to you below!!! Paul Dickie @BuckyFestoon

Apr 7, 2016 · Prostate Cancer in Prostate Cancer

To: @robertjohn @hamhock @giddyup1

In July of 2011 my PSA was over 25,000 (you read that right), I was jaundiced, My liver was failing, my kidneys were failing (you can read my detailed story on my Hope Digest Facebook page). I went to my local MN hospital and they didn’t have a clue. I called The Mayo Clinic and they told me to send my medical records to Dr. Eugene Kwon in the urology department. When I saw Dr. Kwon and his team for the first time they weren’t sure I would make it to my 2nd appointment BUT their attitude was if there was a way they would find it. They started me on Lupron and I had a double nephrostomy. 8 weeks later my PSA was down to 103. 2 major surgeries and 4 month regimen of chemo got my PSA to 0 and all of the cancer gone. Now I am 3 years removed from my last surgery my PSA remains undetectable. I have 2 PET scans every 6 months including the C-11 Choline PET scan (which Dr. Kwon was instrumental in developing, is the best scan available to detect prostate cancer early AND is currently the only place in the US you can get it is Mayo Clinic Rochester). I am cancer free today, on no meds, am working full time and can do anything with no restrictions because of Dr. Kwon & The Mayo Clinic!!!! No one else thought I had a chance.

So my advice to you is if possible get in to see Dr. Kwon (Urology Dept., Mayo Clinic Rochester). Tell him Paul Dickie sent you if you have trouble getting in. IMHO and that of many others that I have met in the 5+ years I have been getting treated by Dr. Kwon, he is the smartest man on the planet when it comes to prostate cancer.

If you want detailed information from me regarding my experience you can private message me on the page I mentioned earlier in this post. All my best to all of you!!! Keep up a POSITIVE Attitude, Surround yourself with supportive, positive praying people, plan your future (what are you going to do when its over), get great doctoring and develop a close personal relationship with Jesus. Those are my tips to almost guarantee success. Keep in touch.

Jul 2, 2014 · prostate cancer in Prostate Cancer

There are 6 things i used to pull me through a MIRACULOUS recovery from Stage IV prostate cancer. I had a PSA of over 25,000 and was (according to my Dr. within a week of total hepatic and renal failure). That was August of 2011. I am now in great health (a bit overweight) with an undetectable PSA and clear scans.

They are:
1. Strong Faith
2. A Grateful / Thankful Heart
3. Wise Counselors – Great Dr’s and others
4. A Tenacious Spirit
5. A Vision for the Future
6. A Strong Support Network – Family, Friends, Prayer Warriors, etc.

I can give you the gory details if you are interested. But I am living proof that no matter how bad things appear they can get better.

@PaulDickie

Jul 2, 2014 · I had a radical prostatectomy in 2001. in Prostate Cancer

Bill –

Make an appointment with Dr. Eugene Kwon (Mayo Clinic Urology) ASAP and tell him Paul Dickie sent you. If you are interested in the gory details of my miraculous recovery from extensive stage IV let me know @BuckyFestoon. Don’t ignore even a small rise in PSA following a radical prostatectomy!!!!!