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Posts (6)

Oct 14, 2019 · “Surviving” Life After Breast Cancer in Breast Cancer

Wow, that's very powerful. It's like she read my mind. The post treatment isolation is almost worse than the physical problems. This isn't what I was expecting at all when I finished treatment. I
often wonder what's the point in surviving.

Oct 14, 2019 · Conflicted on taking medication in Breast Cancer

It's a tough decision, and one that I struggle with every day. I had invasive mixed ductal and lobular
carcinoma stage 2v, and lobular carcinoma in situ.
I had a double mastectomy with all of the sentinel and axillary lymph nodes removed. I know I have a higher risk of recurrence than you do, but here's my experience – I've been on Arimidex for 4 years and Zoladex for about a year, and it's been a nightmare. I started taking Taurine supplements which greatly reduced the joint pain. 20% of women on the hormone blockers quit taking them due to the side effects. I have no criticism for anyone who chooses to do that! The thing that makes me continue them was watching my grandma die of breast cancer. I don't know if you have an oncology rehabilitation medicine physician, but they might be able to help you manage the side effects. I know it's hard and I'm so sorry you're suffering!

Oct 14, 2019 · Conflicted on taking medication in Breast Cancer

I really wish doctors did a better job at explaining this!

Oct 14, 2019 · Concerned about the side effects of anastrozole in Breast Cancer

I've been on Arimidex for 4 years and I have all kinds of bone and joint disorders. This runs in my familu so it's hard to know if it's due to that or the Arimidex. I had to herniated disc in my cervical vertebrae, and the pain went down my arm. The epidural steroid injection was ineffective, but PT REALLY helped. I know the drug can cause osteopenia and osteoporosis, which can lead to spinal compression fractures, so my oncologist orders a DEXA every year, and I get a Prolia injection twice a year. It might be worth looking into. I also have a spine, and rehabilitation medicine doctor, and he monitors everything as well.

Oct 14, 2019 · Celiac accidentally glutened in Digestive Health

Does anyone know how long someone can eat gluten before becoming anemic? I think I was accidentally glutened for about 5 days, and although that was about 2 weeks ago, my fatigue is still through the roof. Other than the standard bowel issues, fatigue is my biggest indicator that I've been glutened. As a cancer survivor, I've experienced anemia before, so I've been taking a 65mg iron supplement for years. I don't know whether or not to ask my doc for iron level labwork.