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Thu, Feb 27 11:32am · Livedoid vasculopathy in Blood Cancers & Disorders

welcome to the group!

Wed, Feb 19 9:14am · Livedoid vasculopathy in Blood Cancers & Disorders

Thanks! This sounds like good advice, will ask Dr. to check blood flow in my lower leg next time I am in.

Wed, Feb 12 11:15am · Livedoid vasculopathy in Blood Cancers & Disorders

I was diagnosed by a young physicians assistant years ago. She had the curiosity and tenacity to keep looking for the problem. I don't have immunology problems but I do have Factor V Leiden that causes blood to clot abnormally quickly. About 20% of people with livedoid vasculopathy have Factor V. There are articles and pictures of LV on the internet. It would probably help to print them off and take to whatever Dr. you see, also any notes on your treatment at Mayo. Drs. had me tested for all sorts of things like Lupus and RA after I was diagnosed with LV, they can't seem to realize that we simply have something that they aren't familiar with. Good luck!

Oct 30, 2019 · Livedoid vasculopathy in Blood Cancers & Disorders

Hi Ruth, When I went to wound care they used the lidocaine solution before debridement. You are right, it isn't as effective a pain killer. I use medihoney because it is a natural debrider and kills many bacteria, so I don't have as much to clean out of the ulcer. Thanks for the info on topicals for numbing the area, I will check with my pharmacist!

Oct 29, 2019 · Livedoid vasculopathy in Blood Cancers & Disorders

Hi Zink, I use Medihoney with calcium alginate as a wound dressing and reapply it every other day to the ulcer. I wash the ulcer with clear running water before applying the honey, putting a thin layer of honey on the ulcer and then covering with a nonstick, non latex containing pad. Since I am allergic to adhesives I wear compression stockings to hold the pad in place and to help keep pressure on my veins. Once a week I scrape dead cells and bits of honey out of the ulcer with a sterile platinum loop. This is painful, but then the ulcer is painful whenever I move. I change the pad once a day, sometimes more if I am active and the ulcer drains a lot.
Sheila

Oct 23, 2019 · Livedoid vasculopathy in Blood Cancers & Disorders

Hi Zenk, I hope the Xaralto works out for you! I had Amnioexcel Plus
tissue application last Nov-Dec. as part of some Drs. experiment in Wound
Care here. From Jan- june of this year I thought I was receiving the
Amnioexcell, but they gave me some other product made from sheep tissue
instead without telling me. My ulcer went from the size of a nickle to the
size of a 50 cent piece. I no longer go to Wound care, since I don't trust
them.

Oct 11, 2019 · Livedoid vasculopathy in Blood Cancers & Disorders

It is sort of active. I look at it when it pops up, but don't know how
many others do. I have had LV for over 20 years.

May 27, 2019 · Livedoid vasculopathy in Blood Cancers & Disorders

Thanks for the info on the eye drops! I will see about the timolol Maleate. If I try it I will have to test it on my skin first to see if I have a reaction to it. I have a number of allergies which complicates things.