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Posts (2)

Sep 23, 2013 · Head Pressure and Feel like Passing Out in Stroke & Cerebrovascular Diseases

My daughter had those symptoms plus blurred vision. MRI and MRV done and then a spinal tap. She was diagnosed with Idiopathic Intracranial Hypertension. The CFS fluid builds up in her brain and that’s what causes the symptoms. How is your vision? I hope that you found out and have got treatment.

Sep 23, 2013 · Idiopathic Intracranial Hypertension/Pseudotumor Cerebri in Stroke & Cerebrovascular Diseases

My 17 year old daughter was diagnosed in Feb. 2013 with IIH without Paplademia.. She has had 7 spinal taps since. LP’s are the only headache relief she can get. Diamox didn’t work and she is on Topamax. She is a Senior in high school and now is on homebound. This is a crazy disease. Her opening pressure was 22 last week but with 30ccs taken off the headache was gone. It is hard to watch her suffer so much. She has 20/20 vision but she is having problems reading due to the vision problems that she has. The Mayo Clinic confirmed her illness after her Neurologists in Atlanta said it was impossible because she doesn’t have Paplademia.