My 17 year old daughter was diagnosed in Feb. 2013 with IIH without Paplademia.. She has had 7 spinal taps since. LP’s are the only headache relief she can get. Diamox didn’t work and she is on Topamax. She is a Senior in high school and now is on homebound. This is a crazy disease. Her opening pressure was 22 last week but with 30ccs taken off the headache was gone. It is hard to watch her suffer so much. She has 20/20 vision but she is having problems reading due to the vision problems that she has. The Mayo Clinic confirmed her illness after her Neurologists in Atlanta said it was impossible because she doesn’t have Paplademia.