No new treatment with regard to Nutcracker for me.
Being on disability for > 5 years, I’ve taken time to find as many helpful therapies as possible. I’m doing somewhat better than when I posted originally, but there has been no magic bullet. In general, here are some (there are MANY more, but I’ve never figured out how to put them all in one place) thoughts on surviving:
If out and about 1 day, next day or 2 are for resting, gentle stretching, sunlight (if available) — NOT for paying bills, etc.
NEVER: Lay on my left side.
NEVER: Lean in a chair in a way that stretches my left side.
If sitting, and I get the sharp, burning pain in LLQ – GET UP! !! Lie down, elevate hips, Heating pads. Sitting through the pain for even a few minutes, I believe, cuts off blood supply to LLQ organs, and pain (which then lasts for DAYS) is due to ischaemia (tissue damage from lack of blood (oxygen) supply).
Pelvic Floor therapy – I need multiple sessions every few months to keep muscle spams calm.
– I’ve found using a different therapist every so often allows me the benefit of varied treatment ideas. The last one had me work methodically at belly muscle control, and now (6 months later), I’m able to LIFT organs in my belly up (WHILE BREATHING COMFORTABLY) so they leave my colon and bladder uncompressed, which has a significant impact on pain.
Trigger point injections vaginally every few months (I have scar tissue that complicates this whole mess).
I finally found a seat cushion that works for me in the car.
Car seat heater – bought one cheap to put on my normally cold seat.
Cupping of tight muscles. I found very affordable cupping kits online.
Hot Epson salts baths.
Infrared light is very effective for relieving tight muscles.
Lymph massage with essential oil infused lotion and/or cupping of sore lymph areas.
DIET / SUPPLEMENTS:
When I am consistent, these good habits help:
Lesten food cravings
Keep digestive system functioning, reducing constipation issues.
Keep energy level up.
I have excess urine crystals, which cause irritation to ureters and severe spasms in the area. Many foods and supplements make it worse.
NO (not even a little):
Foods high in both calcium and phosphorus seem to cause urine crystal problems for me.
Only 1 new food, med, etc at a time for at least 2 weeks — pay close attention. Often I can’t figure out if ok or not, so after multiple trials, I trust my gut feeling: “It seems that asparagus causes problems, but I don’t know for certain.” I’ve learned to follow my instincts. They’re always spot on.
I keep a “perpetual” small crock pot of broth and add water and roasted bones as it depletes (along with a little apple cider vinegar, onions and garlic – and sea salt). I add strained broth to cooking every day.
B6, B12 (METHYLcobalime), Folic Acid combo.
VSL #3 Probiotic
Oregano (mix w coconut oil for thrush).
Sometimes I keep a pot on the stove, just steaming and drop some oil in the pot and breath it in.
Thai curry paste (in cooking).
All fruits and vegetables I can tolerate must be cooked (except citrus, but I wash citrus peels with soap first).
Lemon juice first thing in the morning (allows stomach to work like it’s supposed to – triggers release of bicarbonate from the stomach lining in response to the acid infusion, which then alkalyzes the system).
Fresh squeezed grapefruit juice.
EVERYDAY SMOOTHIE (many of the ingredients increase mitochondrial function) containing:
Cooked, tolerated fruits (pears, apples, cherries, blueberries, cranberries), cocoa, brazil nuts (selenium), cinnamom, coconut cream/coconut milk.
Magnesium Citrate powder (Natural Calm prepared with hot water).
Powder Combo: L-Glutamine, Acerola cherry vitamin c powder, cranberry extract powder (from capsules), D-mannose (cranberry/mannose combo clears u.t. junk).
Ground flaxseed (tiny amount – this is my current new food that I’m testing at this moment.
Too many to mention, but I’ll hit on the ones I think are most helpful for direct nutcracker problems:
DITROPAN XL (only the brand name works). Anticholinergic that relaxes urinary tract spasms.
THYROID MED – without it, allover spasm issues are unbearable.
XYZAL – antihistamine – without it my body is way too reactive to everyday allergens that affect me, be it sinus swelling, body aches, bone pain or muscle pain.
FULL TIME JOB:
Seems like it.
Seems to be the best route I know of at the moment.
I am, by no means, cured. I do, however have more good days than I used to (not yet more good than bad, but it’s progress.
Every sinus infection, virus, injury sets me way back, but even though it’s a slow process, I now can climb “out of the hole” with a process I don’t have to guess at as much as I used to.
Everyone is different. What works for me may not for you. But, if anybody finds this is useful, maybe it will jump start your path.