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Posts (4)

May 30, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I have not been tested since 2009 …and no symptoms have reoccurred.

Jul 2, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I am doing wonderful! No meds after the year of treatment . I do believe I
would have died without them. I could not even shower myself. Had no energy
and would fall into the bed each day after work. The treatment was rough
but it killed the spores. Took me awhile to get over the treatment if
antibiotics .

*Deby *

Jun 20, 2015 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I’m reading these comments with much understanding . I really never thought
I would live to see another year. That was 2008. I also had antibiotic
therapy for a year. High doses about 3200 milgrams of antibiotics a day. It
worked . I was very week for that year and had very few side effects.
Coughed up every morning for awhile to rid my lungs of mucus. I had a great
lung physician , without him I wouldn’t be here today.

Mar 10, 2013 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I would love to add to this discussion or chat with either of you. I was diagnosed with this disease in 2008. I was on 3200mlg of high powered antibiotics for a year. I recovered completely. I am having some issues now and wondering how each of you are doing.