About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts ()

Feb 26, 2013 · Visual Snow: Anyone experience this? in Eye Conditions

I’ve had ocular migraines – this is completely, totally different. For one thing, it covers the entire field of vision, for another, it’s 24 hours a day, nonstop.

Migraine medication has been used on some patients with little to no success. You can see what visual snow looks like at the eyeonvision site – just do a search to find it. The images they provide are very, very much what I see.

Feb 26, 2013 · Visual Snow: Anyone experience this? in Eye Conditions

I’ve had this since early childhood – as long as I can remember. It’s getting worse with age. (I’m 46.)

It wasn’t until my 20s when I realized it wasn’t normal. Then the eye doctors I asked had no clue what I was talking about. Only yesterday did I find a name for it. Here I had begun to believe I was the ONLY one — so glad there are others!

There doesn’t seem to be a cure at this time, or even much in the way of research. I have read there seems to be a connection with auto-immune disorders, particularly Lupus. I have several symptoms of Lupus including butterfly rash and positive ANA, but it doesn’t seem doctors want to diagnose it without kidney damage. (Which makes no sense to me.)

Have you had much bloodwork done on your daughter?