Phoenix K (@nickkarenl)

My husband was diagnosed with bladder cancer in 10/2011. He had neoadjuvant chemo for several months, his major surgery including formation of the ileal conduit for ostomy in spring 2012. Lots of complications, and ureter revision surgery in summer 2013. He’s been on the kidney transplant list for a couple years now, though is currently inactive on the list because his GFR is at 24…higher than when he was first places on the list.

My spouse has a urostomy following removal of his bladder, etc., due to bladder cancer. He also has CKD from the chemo he is on. My issue is the strong odor of his urine and the night bag that he must wear due to his abundant urine output at night. Daily, we clean with a combo of vinegar and water (leaving it in night bag to soak until nighttime, but the bag takes on the odor, so is still offensive. I'd like to know if others have dealt with this issue and how, and/or with what? Are there bags less prone to absorbing odor? Better ways to clean the bag? Any and all suggestions will be appreciated! Thank you!