About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (1)

Oct 13, 2012 · Undefined connective tissue disorder in Just Want to Talk

I’m wondering what you found out at your appointment. I recently started swollening in the wrists, hands, ankles, and feet. I’m stiff and achy. My knuckles are so swollen that I can’t wear my wedding ring. My tongue gets swollen taste buds and feels like I burnt it. The Rhuemotology doctor so much blood work and baseline testing on heart, lungs, esophagus and stomach. All test come back normal. My capillaries in my nail beds are looped and he stated that along with my other symptoms (swollening, sides hurting, constipation, dry itchy skin, sores in nose, tingling in hands and feet, acid reflux, fatigue, feverish with no fever, chronic cold handsand feet, sensitive to temperature changes) that it could be systemic sclerosis. He is having me see a expert at the U of M. He called today to review the results of the anti-body tests and stated that I didn’t have any present. He thinks it still could be systemic sclerosis caught early or undefined connective tissue disease. He has be on the generic plaquenil twice a day. He said that the swollening and aches should go away in 1-2 months on this medicine. I’m not a big med taker and don’t like the thought of taking this medication. Any thoughts? What have you found out?