Member has chosen to not make this information public.


Member not yet following any Groups.


Member not yet following any Pages.

Posts (5)

Feb 12, 2013 · Trigeminal neuritis/neuralgia treatment: in Brain & Nervous System

I had the microvascular decompression surgery on December 17th at Mayo in Rochester. Operation on Monday – released Wednesday morning. It took over a month to back off the carbamazapine and gabepentine I was taking, but I have absolutely no more pain. My left vertebral artery was pressing against the trigeminal nerve and 3 tributaries from the artery had wrapped around the nerve as well. They had to pinch the nerve several times to get everything separated which can sometimes lead to side effects. All I notice is a slight ‘fuzzy’ feeling on the tip of my tongue and the center of my upper lip. I can live with that versus the extreme shocking pain I was experiencing in spite of the prescriptions. I’ve reflected quite a bit on how people must have dealt with this ailment before all the medical techniques known today were available.

Aug 27, 2012 · Trigeminal neuritis/neuralgia treatment: in Brain & Nervous System

I believe what triggered mine was an incident I had overseas. I felt/heard a ‘pop’ in the back of my neck and a ‘fire’ up the back of my head to my forehead. This happened about 7 pm and it only lasted a few seconds. Later – around 3 am I awoke and tried to get out of bed. I had severe balance problems and collapsed on the floor. I was taken to a doctor where he discovered I had extremely high blood pressure as well. After 3 prescriptions and about 5 days I flew home and my family doctor has had me on blood pressure medications ever since. the MRI showed I had a collapsed right vertebral artery, so 10% of my blood flow was affected to areas of the brain that deal with short term memory and balance. I read on the Internet that a collapsed vertebral artery can cause trigeminal neuralgia on the opposite side of the face – exactly where mine is. I saw a specialist in Iowa City – he said I was suffering from ‘dementia’ – it was all in my head – I was just imagining the pain. What a joke! Then I saw a local neurologist. He spent 5 minutes with me and claimed the collapsed right vertebal could have been that way since birth. Right … That’s when my family doctor got me the referral to Mayo. I’m not imagining the pain! I am an intelligent adult; I serve on city council; I participate in community theatre; I teach a Sunday School class; I have 6 kids, their spouses and 8 grandchildren I interact with on a regular basis. At 56 I have a lapse of short term memory occasionally that I recognize. I think it is because of age and the lack of blood flowing to my brain that controls short term memory.

I did fall off a ladder in August 2011 and smacked the back of my head, but the trigeminal neuralgia started in mid-December.

I do have a question for those on a combination of tegretol & gabepentine. Do you experience slight spasms in your shoulders, elbows, and wrists? I’m taking 200 mg of tegretol 3 times per day and the same with the gabepentine. I recently increased the dose to that level and did not experience these before.


Aug 24, 2012 · Trigeminal neuritis/neuralgia treatment: in Brain & Nervous System

I’ve had an MRI, MRA etc … I’m on the same medications, but they have stopped working. This is normal according to Mayo. My neurologist wanted to have a doctor in his complex do a nerve block procedure, but I read on the Internet that the procedure they wanted to perform was obsolete and would need to be repeated every 3 months if it did work. I’m tired of the pain. I have an appointment at Mayo in November, but I’m afraid they will start all over with the same testing. I want some type of procedure done to permanently address it. Even if it causes some numbness – that has to be better than the pain I have had for the past 9 months.

Aug 23, 2012 · Trigeminal neuritis/neuralgia treatment: in Brain & Nervous System

Were you treated at Mayo? If so, how long was the stay and what treatments did they do?

Aug 23, 2012 · Trigeminal Neuralgia in Brain & Nervous System

Same thing – The Mayo site says this is typical. It works for awhile then stops. I’m in that situation now. Hurts to brush my teeth, difficult to eat, can’t project my voice …