As you can see, we lost 2 that were terrific – the replacement was not as apathetic as your new md, but we could see that he had a huge patient load dumped on him and it was not a specialty in neurosurgery that he was seeking – but had some invaluable experience with some mds that have made huge differences in shunts and hydrocephalus. So, I went back to our neurologist and she set us up with someone in her immediate network. And she left, too. When we didn’t get our annual appointment notice – I pushed for an appointment and was pleased to meet with Dr. Gwinn – who had a different take on my husband’s current situation and with the backup there, I contacted the VA, who helped, and now returned us back to the lineup for the super specialist in the area.
So, what I am saying – play all the cards you have and then reshuffle and find new options. I am the caregiver – so perhaps you need an champion/caregiver to put the foot in the door or call back and not let you get set aside.
Looking forward getting good news from you.